sclerodermafriendsandfamily : Messages : 360-389 of 612

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360	Hi My Mum has been suffering for the last four years, feel free to email me if you wanna chat, my addy is kentishlad_1999@...<br><br>I look forward to...	kentishlad_1999	Sep 4, 2001 5:57 pm
361	Hi!<br><br>For the account of two scleroderma sufferers (one with morphea) who were greatly helped by Edgar Cayce's remedies, visit<br><br><a...	dudley_delany	Sep 11, 2001 7:16 pm
362	My 34 year old daughter is very ill with SD and is due to go into the Royal Free Hospital to have a once in a life time infusion of ATG. Has anyone heard of...	jilldom	Sep 13, 2001 8:26 am
363	Here's a patient information page about antithymocyte globulin (ATG):<br><a href=http://www.healthanswers.com/Library/Gsm/patinfo.asp?drugid=2099...	alby40	Sep 13, 2001 1:43 pm
364	Hi Jilldom<br><br>Sorry can't help you with the ATG drug, my mother suffers from SD as has the systematic type which is affecting her insides, she frequently...	kentishlad_1999	Sep 13, 2001 9:08 pm
365	Do most SD people have a numming Sensation thoughout their body? And another thing the anyone take any type of herbs,to help the pain and the movement of our...	flflow1	Sep 14, 2001 3:38 pm
366	Are these acturally success srories,or do these rememdies just help cope with the pain,but these people still have SD,and are they on Oxygen?...	flflow1	Sep 14, 2001 3:43 pm
367	Now back from London Royal Free where my daughter was in for two weeks having iloprost and octagam infusions, the good news is they are holding back the ATG as...	jilldom	Oct 16, 2001 8:33 pm
368	My best friend has been in and out of the hospital 3 times in 3 weeks and was finally diagnosed. Almost a year ago she was "diagnosed" with rhemetoid ...	kgmb8490	Oct 22, 2001 2:54 am
369	Karin<br><br>I am sorry to hear about your friend, My Mum is a sufferer of SD which was diagnosed about 3 years after many hospital visits where the doctors...	kentishlad_1999	Oct 22, 2001 5:17 am
370	Thanks you for responding Mike. I myself belong to a yahoo group similar in its set to this one for a medical condition of my own, and I have found it to be a...	kgmb8490	Oct 22, 2001 5:21 pm
371	Hi Everybody!!<br>I just wanted to write a note to re-introduce myself, seems like ever since I joined yahoo a few months ago my life has just gone wacko....	weez_s	Oct 22, 2001 8:05 pm
372	Hi, this sounds so much like me. I was dx almost five years ago with MCTD and still try to live my life as normal that I'm not sick. I have been so scared ...	madmonkey_76118	Oct 23, 2001 1:09 am
373	sorry i've been mia lately...life has been kinda nuts on this end...glad to see so many of you posting...welcome to the newcomers!<br><br>well, on halloween,...	blue-eyes-1012	Oct 25, 2001 1:22 pm
374	My wife was diagnosed with scleroderma this summer, after having a bout with heart palpitations, and a cardiac echo showing pulm hypertension. I think she...	miller7982001	Nov 13, 2001 5:56 pm
375	My Mother suffers from SD, its the systematic type, I would say its her way of dealing with this disease and the most comfortable way of communicating with...	kentishlad_1999	Nov 13, 2001 6:48 pm
376	Hi this sounds so much like me. I have been dx. for five years now and still have a hard time when I'm with other scleroderma patients. She has to remember...	madmonkey_76118	Nov 13, 2001 9:08 pm
377	You mentioned in an earlier message that you had MCTD. How did your doctors come to that conclusion? We are wondering if my wife may have this rather than ...	miller7982001	Nov 14, 2001 1:33 pm
378	Here's a website on MCTD -<br><a href=http://hometown.aol.com//lindartc/index.htm target=new>http://hometown.aol.com//lindartc/index.htm</a>...	alby40	Nov 14, 2001 2:52 pm
379	Miller, I'm in Hilliard. Maybe your wife would like to talk to me? I don't have severe facial disease and I understand her problem. The first meeting I walked...	alby40	Nov 14, 2001 2:57 pm
380	Actually I have been to four Drs. now and that is what they all came up with. I had a hard time believing I was sick. I was only 25 how could I be so sick was...	madmonkey_76118	Nov 14, 2001 4:35 pm
381	My name is Sharon. I have Scleroderma. I have the same fears. I have not been to a support meeting yet because of the same fear. I am so emotional about my ...	adamsgirl65	Nov 16, 2001 3:40 am
382	Thank you for your postings. It is helpful to just know other people are out there dealing with this dreadful condition....	miller7982001	Nov 16, 2001 1:45 pm
383	Hi Sharon,<br><br>I am not a scleroderma sufferer, but my hobby is medicine. There is some new research that seems<br>to be slow to spread about the treatment...	ronfrombell	Dec 1, 2001 6:54 pm
384	I wish your friend all the luck in the world. I have been suffering along with my wife for five years now. I think we hit the low point last year. She tried ...	wooliegeek	Dec 6, 2001 6:09 am
385	Hi everyone<br>I am new to this but I have just recently lost my husband of 31 years. He passed away on Nov 8/01.<br>He had sclerodurma and Lupus. He had ...	babieboots	Dec 10, 2001 10:50 am
386	So sorry for your loss. Hopefully he was not suffering at the end....	miller7982001	Dec 12, 2001 3:52 pm
387	Is anyone using low-dose antibiotics for scleroderma? There are a few articles out there on this, but our docs do not seem to support it....	miller7982001	Dec 12, 2001 4:04 pm
388	That's not true. I'm in Columbus and I'm on minocycline. It's not that docs don't support it, they are not allowing others (near Columbus) to claim it as a...	alby40	Dec 12, 2001 4:19 pm
389	I havent writtne in a while but i have been reading all the posts. My friend was just released form the hospital yesterday. The SD has attcked her kidneys. She...	kgmb8490	Dec 16, 2001 10:43 pm

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