Dear Cheri,<br><br>I lost my mother to this horrible disease on January 27th of this year. My mother was a hard workingwomen her entire life and had to in ...
Hi Anet<br><br>Firstly I am so very sorry to hear of you loss, this disease is horrible.<br><br>My Mum was diagnosed with SD about 4 years ago, this was after...
sorry i have been mia...things have been crazy on this end! busy, busy, busy! Glad to see so many of you posting!<br><br>Hope everyone is doing well...i keep...
You are right, I also live in NY and I'm so glad it is over. I couldn't resist the heat and had to stayed home under AC all day. I hope the Electricity bill...
Hi Chereller,<br><br>I'm not a Doctor or stocks holder of the company, only a scleroderma patient. I'm taking this medication for over eight months and it had ...
My sister was diagnosed w/raynauds syndrom about 10 years ago,scleroderma later.She's never been one to talk when things get tough in her life(which is really...
Hi Lynne<br><br>I really do sympathise with you, my mother was diagnosed about 3 years with sceleraderma, this after many visits to the hospital to find out...
My mother took a dose of the above back in march of this year I personally feel that it did not do anything noticeably better and in fact a few weeks after my...
It was probably used to dilate blood vessels - is your mom having problems with finger ulcers or other affects from Raynaud's? Iloprost was shown to work well ...
Dear Lynn,<br>My husband was diagnosed with scleroderma almost 2 yrs ago. 4 the 15 yrs we have been married he has been the picture of health. When he got sick...
just learned form the other SD yahoo club....<br><br>on the Lifetime channel <br>"Strong Medicine", on Sunday, Aug. 18 will feature a story about someone with ...
Do all Scleroderma Patience have to be on oxygen?<br>Are their some that are on oxygen,and some that are not,and if yes can someone explain this process and...
My husband doesn't have 2 b on oxygen and hasn't yet. I don't understand that. Has it affected the lungs? This is interesting 2 me. Let me know what u find...
Hi! I was diagnosed with SD about 4 years ago, and I have lung involvement. I am on home oxygen as needed. Not every case requires oxygen, and not every SD ...
Thank you for the correction! You friends and family know about us patients and our brain-fog - that was a prime example! Almost as good as the time after ...
hey alby40,<br><br>yes my brain is in a fog. what are you talking about? sorry i am new to this computer stuff. what is the correction? don't understand. ...
my husband filed for divorce 7 months ago because of my sd. we were together 15 years. as anyone with sd knows stress is not good for the condition. how...
Hi well not too sure if I can tell how to deal with this, I have never been divorced myself. I would say that SD causes alot of fraustration, my mum suffers...
<my husband filed for divorce 7 months ago because of my sd. we were together 15 years. as anyone with sd knows stress is not good for the condition. how...
Yes I am on Oxygen, been on it for ten years,been on it for 24 hrs 6 years.Would like to know other symptons of SD if possible,I am losing my eye sight and ...
Hi My sister/n/law is having it rough latley,wondering if she really does have SD.<br>She can't believe that she is going blind and all the test results have ...
was wondering that myself...what you all thought...i was away for the weekend, and was unable to watch it...set the VCR, adn there was a thunderstom that...
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