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sclerodermafriendsandfamily · for those of us also affected.
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Messages 302 - 331 of 612   Oldest  |  < Older  |  Newer >  |  Newest
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302
here is another article related to the other one that was posted...<br><br><a href=http://www.nih.gov/niams/news/sclero_01.htm...
blue-eyes-1012
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Jul 3, 2001
1:22 pm
303
There's a Yahoo Group for discussing governmental issues as they relate to our disease (research funding, healthcare reform, etc.) Come and get invovled!<br><a...
alby40
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Jul 5, 2001
1:19 pm
304
Can anyone give me any information on it? My aunt is thinking about taking. what do you guys think....
ccherreller
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Jul 11, 2001
6:17 pm
305
Hi,my best friend of 14 years was diagnosed about 2 years ago with scleroderma. She has had arthitritis since she was about 6. I had and still really have no...
sams_96
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Jul 14, 2001
12:11 am
306
I thought I should reply to your note, my Mother suffers from SD and was diagnosed about 4 years ago. She has the type which has affected her stomach and skin....
kentishlad_1999
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Jul 14, 2001
9:37 pm
307
I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...
alby40
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Jul 15, 2001
12:30 am
308
Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...
yobeca
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Jul 15, 2001
4:42 pm
309
does any one know what a barium swallow is for?<br>I had a bunch of tests done today and that was one of them.also it took 2.5 hours after swallowing the ...
sherry_penman
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Jul 20, 2001
5:31 am
310
My Mother has had a couple of Barium meals which is what they are called here in UK. The time may vary as the chalky stuff needs to get through your system for...
kentishlad_1999
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Jul 20, 2001
5:34 am
311
This is a pretty nice explanation of what a barium swallow test is for as well as how the test is done:<br><a...
alby40
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Jul 20, 2001
2:44 pm
312
Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...
kentishlad_1999
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Jul 21, 2001
5:59 pm
313
I was diagnosed 7 months ago with discoid lupus-then they call me and say it might not be lupus and are now looking for scleroderma...ok...now they send me my...
sherry_penman
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Jul 25, 2001
4:25 am
314
I would suggest maybe writing the words down, They are quite a few members here and I am sure some will be able to help or at least its worth a go!...
kentishlad_1999
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Jul 25, 2001
4:50 am
315
epidermis,papillary dermis,<br>they say the epidermis shows papakeratosis with focal vacuolization.<br>sarcoid<br>granuloma annulare<br>also--my mch and mchc...
sherry_penman
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Jul 25, 2001
3:54 pm
316
Here's a site that explains the mhc and mchc.<br><a href=http://www.healthcentral.com/mhc/top/003648.cfm...
alby40
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Jul 25, 2001
5:29 pm
317
GOOD MORNING everyone!!!!!<br>hope today finds everyone well and feeling fine.have a good day.<br>HAPPY BIRTHDAY JENNIFER!!!!!<br> sherry...
sherry_penman
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Jul 27, 2001
3:11 pm
318
Hello everybody-Does anyone know if you can get lupus or sclerorderma from a blood transfusion?<br>Thanks for any help....sherry p...
sherry_penman
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Jul 30, 2001
4:45 am
319
I am pretty sure that you can't but I am not 100% sure, I am sure this was one of the questions my Mother asked when the SD was finally diagnosed. But maybe ...
kentishlad_1999
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Jul 30, 2001
5:01 am
320
Scleroderma is NOT contagious. There's no "scleroderma germ." It's the result of your own body's immune system overreacting to known or unknown triggers (known...
alby40
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Jul 30, 2001
4:02 pm
321
thanks for the imformation.You have been very helpful!!<br>sherry p...
sherry_penman
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Jul 31, 2001
2:39 am
322
Hi. I just foudn this club and was wondering if anybody out there ever lost a parent to scleroderma. I did about 12 years ago. It's still hard on a day to day...
cheri_dorwart
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Jul 31, 2001
3:00 am
323
Hi Cheri<br><br>Well My Mum was diagnosed with SD about 4 years, it is really taken its toll and the affects it has on my Mum is on the increase. She is also ...
kentishlad_1999
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Jul 31, 2001
4:51 am
324
Dear Cheri,<br><br>I lost my mother to this horrible disease on January 27th of this year. My mother was a hard workingwomen her entire life and had to in ...
anet_90065
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Aug 2, 2001
6:37 am
325
Hi Anet<br><br>Firstly I am so very sorry to hear of you loss, this disease is horrible.<br><br>My Mum was diagnosed with SD about 4 years ago, this was after...
kentishlad_1999
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Aug 2, 2001
7:04 am
326
sorry i have been mia...things have been crazy on this end! busy, busy, busy! Glad to see so many of you posting!<br><br>Hope everyone is doing well...i keep...
blue-eyes-1012
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Aug 2, 2001
3:39 pm
327
hi...how is everyone surviving the heat wave...looks like it's almost over here in ny state...
blue-eyes-1012
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Aug 10, 2001
4:27 pm
328
You are right, I also live in NY and I'm so glad it is over. I couldn't resist the heat and had to stayed home under AC all day. I hope the Electricity bill...
yobeca
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Aug 12, 2001
11:02 pm
329
Hi Chereller,<br><br>I'm not a Doctor or stocks holder of the company, only a scleroderma patient. I'm taking this medication for over eight months and it had ...
yobeca
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Aug 12, 2001
11:41 pm
330
My sister was diagnosed w/raynauds syndrom about 10 years ago,scleroderma later.She's never been one to talk when things get tough in her life(which is really...
oz4glinda
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Aug 13, 2001
1:42 am
331
Hi Lynne<br><br>I really do sympathise with you, my mother was diagnosed about 3 years with sceleraderma, this after many visits to the hospital to find out...
kentishlad_1999
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Aug 13, 2001
6:49 pm
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