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sclerodermafriendsandfamily · for those of us also affected.
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Messages 285 - 314 of 612   Oldest  |  < Older  |  Newer >  |  Newest
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285
it's been so quiet in here for months...i've been so busy! anyone feel like checking in....how are things going?<br><br>D...
blue-eyes-1012
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May 25, 2001
1:21 pm
286
here is a url for another SD board on line....in case anyone is interested...<br><br><a href=http://pub59.ezboard.com/bsclerodermadiscussionboard...
blue-eyes-1012
Offline Send Email
May 25, 2001
1:22 pm
287
could you guys check that your e-mail is correct in the e-mail section....i get alot of returns when i send out group e-mail! thanks!!<br><br>D...
blue-eyes-1012
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May 25, 2001
1:31 pm
288
I feel for you so much. My mother passed away February 9th while I was holding her hand. I miss her every day, but I know that she is in a better place, they...
nomi1_99
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Jun 6, 2001
6:20 pm
289
I appreciate your prayers. We need as much of those as we can get. I'm deeply sorry for your loss. YOu are right when you say that she is in a better place,...
sweetgal56_2001
Online Now Send Email
Jun 7, 2001
9:27 pm
290
hi all....just a reminder...june is SD awarness month...feel free to use the graphic to promote awareness...let me know if you would like a "plainer" one.......
blue-eyes-1012
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Jun 11, 2001
1:24 pm
291
Does any one have problems with their eyes,and is it related to Scleroderma,like is this part suppose to happen.would like to know more please email Francine...
flflow1
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Jun 15, 2001
4:53 am
292
I would like the oppertunity to chat with other members....
cass40uk
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Jun 15, 2001
10:31 am
293
Hi I am a female,with SD my email is flflow@......
flflow1
Offline Send Email
Jun 17, 2001
4:58 am
294
this is a copy of a e-mail i recieved...though some of you may be interested...<br><br>i also belong to the e-mail group the 2 messages came ...
blue-eyes-1012
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Jun 20, 2001
1:31 pm
295
hi francine....my mom (who has SD) has probelms with her eyes being dry sometimes...what kind of eye problems?...
blue-eyes-1012
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Jun 20, 2001
1:33 pm
296
hi....a note to eveyone....remember we have a chat room here at the club....anyone who owuld be interested let me know, maybe we can find a good time to get...
blue-eyes-1012
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Jun 20, 2001
1:34 pm
297
Have you been to the SSD website?<br><a href=http://www.ssa.gov/disability/ target=new>http://www.ssa.gov/disability/</a><br><br>About.com also has a good area...
alby40
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Jun 20, 2001
1:49 pm
298
thanks amy....hehe...didn't think about the ssa site...hehe...
blue-eyes-1012
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Jun 20, 2001
4:54 pm
299
problem seems to be that she hasn't worked in 17 + years, cause before she got sd she stayed home to take care of me and my younger sister....so she hasn't ...
blue-eyes-1012
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Jun 20, 2001
5:06 pm
300
<a href=http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html target=new>http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html</a>...
blue-eyes-1012
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Jun 27, 2001
2:14 pm
301
Hello Francine. Are you taking any medications like Plaquenil? I have read that that can cause vision problems. Just an FYI. Take care of yourself!...
dnickelson
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Jun 27, 2001
5:56 pm
302
here is another article related to the other one that was posted...<br><br><a href=http://www.nih.gov/niams/news/sclero_01.htm...
blue-eyes-1012
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Jul 3, 2001
1:22 pm
303
There's a Yahoo Group for discussing governmental issues as they relate to our disease (research funding, healthcare reform, etc.) Come and get invovled!<br><a...
alby40
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Jul 5, 2001
1:19 pm
304
Can anyone give me any information on it? My aunt is thinking about taking. what do you guys think....
ccherreller
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Jul 11, 2001
6:17 pm
305
Hi,my best friend of 14 years was diagnosed about 2 years ago with scleroderma. She has had arthitritis since she was about 6. I had and still really have no...
sams_96
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Jul 14, 2001
12:11 am
306
I thought I should reply to your note, my Mother suffers from SD and was diagnosed about 4 years ago. She has the type which has affected her stomach and skin....
kentishlad_1999
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Jul 14, 2001
9:37 pm
307
I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...
alby40
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Jul 15, 2001
12:30 am
308
Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...
yobeca
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Jul 15, 2001
4:42 pm
309
does any one know what a barium swallow is for?<br>I had a bunch of tests done today and that was one of them.also it took 2.5 hours after swallowing the ...
sherry_penman
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Jul 20, 2001
5:31 am
310
My Mother has had a couple of Barium meals which is what they are called here in UK. The time may vary as the chalky stuff needs to get through your system for...
kentishlad_1999
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Jul 20, 2001
5:34 am
311
This is a pretty nice explanation of what a barium swallow test is for as well as how the test is done:<br><a...
alby40
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Jul 20, 2001
2:44 pm
312
Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...
kentishlad_1999
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Jul 21, 2001
5:59 pm
313
I was diagnosed 7 months ago with discoid lupus-then they call me and say it might not be lupus and are now looking for scleroderma...ok...now they send me my...
sherry_penman
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Jul 25, 2001
4:25 am
314
I would suggest maybe writing the words down, They are quite a few members here and I am sure some will be able to help or at least its worth a go!...
kentishlad_1999
Offline Send Email
Jul 25, 2001
4:50 am
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