My Grandpa has scleroderma. He recently had to have a drainage tube put in and he bled badly afterwards. This is bad because he is O negative. Now he has to ...
I first posted to this group on 24 August, telling of my friend who was struggling through a very difficult painful time with scleroderma. On 23 September my...
My mother was diagnoised with Scleroderma in the early 1970's. Have been dealing with it for years and it has just gotten to the point that I am at a total...
Hi! Its me,Yvonne Johannes,(crit).Just wanted to let everyone know in this community that my email addy is now as follows:critterkeeper2001@... Hope...
Hi. My Grandpa has scleroderma. I don't totally understand this disease. What does it do? I know he is bad off. They don't think he has very long. I am...
My name is Dusty, I lived with a suffer of scleroderma for almost 11 years. Her name is Kimera J. Goodman and she left us all January 20th 2002. I have come...
got this message in an e-mail...can anyone help? I have had scleroderma for many years. This year, I have had a lot of dental problems and therefor a lot of...
Hi, My name is Julie, and my mum was diagnosed with CREST a couple of years ago, but recently got the diagnosis specified to Systemic Sclerosis (scleroderma)....
I'm very pleased to have found this website, as I have a dear friend who suffers from scleroderma. We live in different states (of Australia). In good times...
Join Us for Online Chats! TODAY, Wednesday, August 21, at 9:30 P ET join SF Interim President/CEO Donna Kohli, who will discuss current SF activities and ...
That certainly is good news,I only hope that more and more people around the world learn more and more about this horrible disease,so we can start to do more...
Hi Everyone It's good to be back on line. Just wanted everyone to know that in the last month here in KY there has actually been 2 benefit fund raisers for SD....
Hello Debby, I was wondering what did your DR give you for this, I dont always itch but i bruise terribly,I have a bruise on my shin that i dont know how i...
Hello everyone, Well i have finally had the appointment with the Rheumatoligist, I dont know what i expected,and he did seem to ask lots of question and he did...
my mom (SDer) has pink eye!!! drops seem to be helping...but, you know how it is with SD..you never know...the normal things can stay with you forever.... ...
hi everyone... just wanted to share this message i got...if anyof you have websites or pages, you can get a SD awareness banner from here to post.... also the...
Hi anyone, My name is Maria and the lady from Australia, well there could be worse than crest.I have had it with raynauds since 1992. I have gone through alot...
Hello Maria, You are absolutly right,things can be worse.I am so sorry you are having such a horrible time.Please know we are all here for you,and will help...
Hi, Im new to this group,so i thought id just say hi. My names Michelle,Im a mother of two girls,I live in Australia and was diagnosed last year with CREST. I...
Hi My sister has just been diagnosed as having Scleroderma along with Raynauds disease. It has been a pretty scary time for all of us lately and it would be...
hi everyone... i've had a few people ask me recently about chat times... anyone interested? we could set some up...what's good for you? mornings, afternoons,...
i hope this finds you well! i hope that you will not give up! i truely believe a positive attitude helps to feel better, i have seen it first hand very...
hi everyone! i have been MIA for quite some time, but do read the digests as they come...hope this finds you all well.... My mom asked me to ask you guys for...
sclerodermafriendsandfamily@yahoogroups.com wrote: To unsubscribe from this group, send an email to: sclerodermafriendsandfamily-unsubscribe@yahoogroups.com ...
Hello there, My name is Carole and I was diagnosed with this condition in December last year. However, it transpires that i have probably suffered with it for...
Hey, you've been converted to a group! Be sure to check out your membership in the group - you can edit it to receive these postings as one daily digest...
sorry i have been so mia lately, and i won't bore youwith my list of excuses! amie...thanks for kinda keeping watch here too....hope to be back in the running...
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