Jessica(my 13year-old SD patient) is going to be a published poet. One of her poems will be in Poetry.com's newest book called "Natures Echos". She is one of ...
hi all...hope this finds you all well...<br><br>wanted topass this along to you all, info from our "sister" sd club...<br><br>Check out the October issue of ...
As a parent of a scleroderma patient, I am excited and open to anything that has helped other patients. I realize sometimes what works on the children doesn't...
>She is definitely more active this year also<br><br>Patti, this is great to hear. As and adult with systemic scleroderma, I absolutely hate that the...
Patti, How old is your daughter? I can't remember if I asked before. Mine is 13 and also has SD on her right leg, although hers now goes from her ankle to her...
Jessica (my 13 sd patient) called to say that the biopsy report had come in, but that the dermatologist is sending it for a second opinion. <br>She said that...
Catt<br>Caitlin just turned 11. She also is affected from hip to ankle, but her only bad, noticable patch is on her upper thigh. I can see in below her knee,...
Hi! <br><br>Many years ago, I saw a video in the lobby of the Association for Research and Enlightenment, an organization in Virginia Beach founded by Edgar...
Patti,<br>Kids can be cruel. Sorry to hear she is having a hard time. Jessica quit wearing shorts quite a while back, she said she was tired of people asking...
happy fall!!! Ilove this time of the year...although i hate the season that follows!!<br>Has anyone read the article in glamour magazine? Any feed back on...
Good question. I have been wondering that myself. I have been terribly busy. My oldest daughter is getting married in 3 weeks. Hope everyone is ok out there....
catt...congrats on the wedding...bet you are really busy!<br><br>hope everyone is doing well also...<br><br>have to take my mom for a bone density test on mon....
Yeah!!!! for your Mom. I know to most no change doesn't sound like something to cheer, but here no change usually means that it isn't any worse. I know Jessi...
hi all...was readding htrough some old news group postings...thought maybe some of you would find someting in these articles...<br><br>Advancing to a...
The videos of the Orlando Scleroderma Conference 2000 are ready. If interested in<br>knowing what took place this year at the many workshops you can contact ...
Please join chatters at www.allhealth.com every Thursday at 9:00P ET for<br>Scleroderma Friends chat. You have to be a member of iVillage, but it's a<br>free ...
Welcome to the club...My name is Catt, I have a 13 year-old daughter with scleroderma. She has the type that is called Morphea, it has affected all of her...
hi and welcome! hope you find the answers you are looking for here! check out the links section of the club...there are many places there you can start to...
Catt<br>I apologize for not getting back to you sooner. Caitlin is off track, so we have been having fun. She is 11. I read a later post of yours too. ...
Hi Chatt,<br>I'am the one that has morphea. Thank you for sharing your daughers case of morphea with me. I was diagnosed with morphea about four years ago, I...
just when things witn my mom were going ok....she had to go to have a heart monitor put on for 24 hours...seems her pulse was almost non existant for about a ...
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