don't have the disease, but I have recently found out that my mother does. She is 54. I wanted to share and ask a few questions. I'm probably violating some...
elcome...my hope for this club is exactly what you asked for, and what you wrote...as you an see it's been a slow start!<br><br>i understand your feelings...my...
'm so glad to find this site and other people who could possibly understand how I feel! my mom has sd., too. she was diagnosed with it in january of 1997 while...
ood to meet you...i'm no expert in this...and won't try to be...hehehe...just knew we needed a group, so started one...your so right...we can all talk about it...
have noticed that you have YahooSclerodermaSupport on your link page. Not many people out there are aware of Scleroderma Friends and Family. Need to post it...
'm working on a banner...and some other type of things...and as soon as i get some time will be posting it everywhere!!! hehehe...may happen Sun. or...
n our club's photo section I have added 2 things...a banner, and a button...I invitie you to add it to your home pages!<br><br>It's easy...<br><br>1. save the...
s I was growing up, my mom never gave out the hugs or the kisses. I am trying to live my own life with my daughter a little bit different. I hug and kiss her...
here doesn't seem to be a scheduled time for chat, but if you are interested, I will be glad to be one of the first! Just leave a time and day that is good...
am flexible for a time to chat. I live on the East Coast of the USA, I know a lot of you are in the Central part or Western part of the USA.<br>What about ...
here are plenty things you can do to show your Mother you love her?<br><br>Do something special for her? Make coupons for things she needs to have done and...
orry for the delay everyone...but have been very busy lately...I've been meaning to set up chat times...<br><br>here's is what i've been thinking...let me know...
ave your friends or family members had problems getting disability, or any anything of that nature...my mom has been basicly laughed at when she goes to the ...
SPECIAL CHAT FOR SCLERODERMA FOUNDATION MEMBERS:<br><br>Dear Scleroderma Foundation member:<br><br>As you may have read in the latest issue of "Newsline," the ...
lue eyes, sounds like a good time for me, Monday is a off day from doing things still resting up from the weekend-and Wed evenings might be not so good, a lot...
ust wanted everyone to know i didn't forget about this stuff...but have been out of town, and getting ready to go out of town again...busy month may ...
ello,<br>A close friend of mine has a sister that is living with scleroderma, and is seeking support and info. She doesn't have a computer, so I'm letting her...
ust got back from a long vacation...want to let everyone know that i'm going to be doing alot of work on promoting the club, as well as getting chat times...
WILL let you guys know... ... does...there is a banner and button in the photo section...add them to the pages, and add the link!<br><br>if anyone has any...
Are you looking for a scleroderma newsletter? If you're not already a member of the Scleroderma Foundation, join! Their excellent letter is "The Newsline."...
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