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Messages 165 - 194 of 612   Oldest  |  < Older  |  Newer >  |  Newest
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165
just recieved this in an e-mail and thought some may be able to use the info...<br><br>TO ALL THE PARENTS OF A CHILD WITH JUVENILE SCLERODERMA,<br>You are...
blue-eyes-1012
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Aug 4, 2000
12:47 pm
166
Thanks for the info.<br>Catt.....
cattm42
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Aug 4, 2000
1:27 pm
167
no problem...anytime!! :)...
blue-eyes-1012
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Aug 4, 2000
8:18 pm
168
once again, lets try to set up a chat time! also....be watching for an exciting contest i have in the wroks for our club, adn for SD awareness! more to come...
blue-eyes-1012
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Aug 5, 2000
12:48 pm
169
Sounds good...Keep up the spirit. We need to get people talking in here. This place is very quiet for having over 100 members.<br>Catt.....
cattm42
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Aug 5, 2000
2:23 pm
170
Diane<br><br>I think a chat room would be great. Sorry, I haven't written since I joined. Caitlin-my almost 11 year old SD kid is close to starting school so I...
pking_84074
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Aug 5, 2000
6:24 pm
171
Thanks alot Diane<br><br>How many members know a child with sd?<br>Patti...
pking_84074
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Aug 5, 2000
6:33 pm
172
Patti, <br>You are total correct. Stress can lower the bodies immune system, which give any disease more room to play. From the research I have done on SD I...
cattm42
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Aug 6, 2000
1:02 pm
173
My 13dd has had it for 6 or 7 years.<br>Catt.....
cattm42
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Aug 6, 2000
1:03 pm
174
Catt<br>Thanks for the info. I have only found one other child in our area (Utah) that has SD.<br><br>My daughter will be 11 in 2 weeks. She wasn't diagnoised...
pking_84074
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Aug 6, 2000
6:28 pm
175
Patti, her symptoms probably went un-noticed as Jessica's did. We kept thinking she was allergic to something, because it just looked like a weird rash around ...
cattm42
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Aug 7, 2000
10:33 am
176
totally agree with you on that one catt....welcome to any suggestions form anyone!!!...
blue-eyes-1012
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Aug 7, 2000
12:56 pm
177
maybe you could post those sites you know of for juvenile sd inthe links section so everyone can benefit...<br><br>i didn't realive there were som many young...
blue-eyes-1012
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Aug 7, 2000
1:00 pm
178
Diane<br><br>I think posting the sites would be a great idea. Thanks Patti...
pking_84074
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Aug 7, 2000
1:45 pm
179
just wondering if anyone has heard of this? Jessi, my 13dd, was so excited when she say a report on it. I thought I would share the story.<br>Follow this link...
cattm42
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Aug 7, 2000
2:35 pm
180
wow catt...thanks for that article...printing it right now to share it with my mom!!! <br><br>Diane...
blue-eyes-1012
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Aug 9, 2000
1:46 pm
181
<a href=http://scleroderma.org/news.htm target=new>http://scleroderma.org/news.htm</a>...
alby40
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Aug 9, 2000
2:26 pm
182
hi all,have limited systemic sd,looking for any info i can get on scleroderma,looking forward to making new friends...
rebel35016
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Aug 9, 2000
3:34 pm
183
Thanks for the link. Great article, I hope it really works, Jessi will be very excited.<br>Catt...
cattm42
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Aug 9, 2000
3:54 pm
184
Hi, rebel. Search on "scleroderma" or "CREST" on Yahoo and you'll get lots of hits to pages with info on the systemic forms. Join us at <a...
alby40
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Aug 9, 2000
4:18 pm
185
the article that catt gave us...has updated info that i thought you would all like to know about...that article is 2 years old, adn alby has shared these newer...
blue-eyes-1012
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Aug 9, 2000
4:48 pm
186
there are alot of links listed in the links section of the club too....toolbar to your left...we're here for you anytime!<br><br>diane...
blue-eyes-1012
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Aug 9, 2000
4:57 pm
187
Hi, I am from Sweden would like to have sombody to chat with with the same problem SD<br>Birgitta...
bifo100
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Aug 9, 2000
5:21 pm
188
I am from Sweden would be glad to have someone to write to. I have SD<br>Birgitta...
bifo100
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Aug 9, 2000
5:28 pm
189
i think the worst part is not knowing what is happening from day to day. my dr said he wished it was rheumatoid because they have better chances of treating...
im2old28
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Aug 9, 2000
5:56 pm
190
Hi Everyone<br><br>My name is Patti, my daughter Caitlin 11 has both rheumatoid arthritis and linear scleroderma. We are really lucky to have the best doctor....
pking_84074
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Aug 9, 2000
6:39 pm
191
there is a club on yahoo for people with SD...the two clubs work nicely with each other...if your interested...<br><a...
blue-eyes-1012
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Aug 10, 2000
1:23 pm
192
My sister met a priest who had Scleroderma and said that his skin hardening has reversed after using a drug called 'LOFTYL'. Unfortunately, the drug can only...
lhodgins_1
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Aug 10, 2000
10:17 pm
193
This is from the Abbott Labs (USA) website www.abbott.com:<br>Loftyl (buflomedil)2 A vasoactive compound sold outside the United States that improves the...
alby40
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Aug 11, 2000
12:40 am
194
Hi...Is this a prescription drug or over-the-counter? Has it reversed all his symptoms or just the skin? This is interesting. Kelly....
KellyGirl28
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Aug 11, 2000
2:39 am
Messages 165 - 194 of 612   Oldest  |  < Older  |  Newer >  |  Newest
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