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sclerodermafriendsandfamily · for those of us also affected.
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Messages 100 - 129 of 612   Oldest  |  < Older  |  Newer >  |  Newest
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100
It is now May 20th. Is anyone around?...
KellyGirl28
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May 20, 2000
10:22 pm
101
Hi,<br> If anyone wants to chat via e-mail, please feel free to write at KellyGirl28@......
KellyGirl28
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May 20, 2000
10:27 pm
102
Hi, I have read that scleroderma is not hereditary but have noticed in my research that alot of people have stated they have a family member with scleroderma...
madmonkey_76118
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Jun 1, 2000
1:10 am
103
as far as i know just my mom...anyone else...i've often wondered about this too!<br><br>Diane...
blue-eyes-1012
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Jun 2, 2000
7:50 pm
104
hi....sorry guys...i have been away for about a month tied up with business trip, adn a vacation!<br><br>lets keep posting and get some talking ...
blue-eyes-1012
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Jun 2, 2000
7:52 pm
105
my mom this week just found out she may have a cyst on her ovary....we all know it may be nothing but with SD could be anything...would like to hear from ...
blue-eyes-1012
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Jun 2, 2000
7:58 pm
106
Hi,<br> There is nobody else in my family that have scleroderma except for my sister, at least not now that we know of. Kelly....
KellyGirl28
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Jun 3, 2000
12:19 am
107
Hi,<br> How is your mom doing with the SD? Did or does she take any medications/treatments?...
KellyGirl28
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Jun 3, 2000
12:22 am
108
hi....<br><br>my mom has had sd for going on 16 years...yup she takes meds....a few new ones lately for blood pressure and estrogen. she ... knock on wood has...
blue-eyes-1012
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Jun 3, 2000
4:13 pm
109
I recieved this in my e-mail....too late to catch the news in the cities listed, but maybe....plus some info on web site listed...<br><br>As part of its ...
blue-eyes-1012
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Jun 7, 2000
2:38 pm
110
check out the newly updated site at <a href=http://www.scleroderma.org target=new>http://www.scleroderma.org</a>...
blue-eyes-1012
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Jun 9, 2000
1:23 pm
111
i received this in an e-mail this morning -<br><br>It was just confirmed that Entertainment Tonight will be airing the Tylyn<br>John Feature at 7:30 p.m. EST,...
blue-eyes-1012
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Jun 9, 2000
1:26 pm
112
read the article here:<br><br><a href=http://dailynews.yahoo.com/h/ap/20000607/hl/scleroderma_drug_1.html...
blue-eyes-1012
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Jun 9, 2000
1:33 pm
113
SD Foundation is meeting at the Today show on Monday the 12th to promote June as SD Awareness month...if you can go adn meet up with them ...if not tune in to...
blue-eyes-1012
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Jun 9, 2000
1:40 pm
114
Kelly'<br>Just wanted you to know that if you need someone to talk to I will listen. My sister died with SD 3 years ago. Hang in there....
Beanie_1959
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Jun 18, 2000
2:57 am
115
My sister has had scleroderma for 10 years. It has affected her entire body. She has severe itching and we do not know what to do to make her more comfortable....
La_Dama99
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Jun 19, 2000
10:37 am
116
my mom's legs used to itch....from the dryness of the skin...she used lotions or cold clothes...hope it helps!...
blue-eyes-1012
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Jun 19, 2000
1:38 pm
117
My partner Michelle has severe itching as well. <br>We put cream all over her twice a day. As well, her doctor prescribed benadryl (?) or the itching. It seems...
theo_trish
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Jun 19, 2000
2:04 pm
118
Hi Kelly,<br>My mom also died three years ago in July with SD.<br>If you ever want to talk to anyone I'm here too.<br>Like Beanie says, Hang in...
ShootingStars_2001
ShootingStar...
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Jun 19, 2000
5:10 pm
119
Dear La_Dama<br>I am very sorry to hear about your sister. Try an alovera lotion and benedryl for the itching. How ever if she is on other meds. which I'm sure...
Beanie_1959
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Jun 19, 2000
11:00 pm
120
How about a chat??? Are mornings and afternoons ok for anyone? let me know...evenings aren't the best for me, but we may be able to work something out...give...
blue-eyes-1012
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Jun 21, 2000
1:04 pm
121
hi blue eyes<br>evenings are better for me or ant yime on mondays can't wait til the chat gets started....
Beanie_1959
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Jun 25, 2000
5:53 pm
122
thought i'd pass this along to you...<br><br>The Scleroderma Federation was launched June 28, 2000, by the group formerly known as<br>the Scleroderma...
blue-eyes-1012
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Jun 30, 2000
1:07 pm
123
Just wanted to let everyone know the story ahout Bob Sagot's sister is on again Monday night check your local listings. This is a very good movie as I havs...
Beanie_1959
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Jul 8, 2000
8:39 pm
124
here's an inside scoop....just recieved in an e-mail...<br><br>&lt;This is a reminder that the ABC TV movie "For Hope" will be re-aired on Monday night, July...
blue-eyes-1012
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Jul 9, 2000
2:40 pm
125
<a href=http://dailynews.yahoo.com/h/ap/20000709/hl/exp_fitness_women_1.html...
alby40
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Jul 9, 2000
8:55 pm
126
Folks, I _have_ seen the movie (have a tape, too) and it can be quite frightening if you don't have a full understanding of the variability of scleroderma. I...
alby40
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Jul 9, 2000
9:13 pm
127
I believe Ronni and friends will have their usual AOL scleroderma chat (10:00P EDT in the Better Health area of AOL - AOL members only) on Monday, which would ...
alby40
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Jul 9, 2000
9:17 pm
128
I have also seen the movie and didn't mean to offend anyone or scare them. However I have lived this night mare....
Beanie_1959
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Jul 9, 2000
9:23 pm
129
Glad to see you're beating it!...
alby40
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Jul 9, 2000
9:32 pm
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