sclerodermafriendsandfamily : Message: On-line Support Group...

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Scleroderma Friends and Family

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Message #98 of 612 |

On-line Support Group...

I was just visiting some of the url's fromthe
link section...this one has added alot since i was
there
last...<br><br><a href=http://www.sclerodermasupport.com/
target=new>http://www.sclerodermasupport.com/</a><br><br>it offers
info...on-line support, books adn e-mail
groups....

Wed Apr 12, 2000 1:50 pm

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blue-eyes-1012

blue-eyes-1012

Message #98 of 612 |

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I added a URL to the link page. It's a site that offersinfo on Raynauds and SD. There are books, videos, and support...plus lots of info...you can check it out...	blue-eyes-1012	Apr 12, 2000 1:45 pm
I was just visiting some of the url's fromthe link section...this one has added alot since i was there last...<br><br><a...	blue-eyes-1012	Apr 12, 2000 1:50 pm
I sure would like to see more messages and I would like to get more information from those with personal experience. I will keep checking in. Hope you all are...	lamthey	May 1, 2000 4:18 am
It is now May 20th. Is anyone around?...	KellyGirl28	May 20, 2000 10:22 pm
Hi,<br> If anyone wants to chat via e-mail, please feel free to write at KellyGirl28@......	KellyGirl28	May 20, 2000 10:27 pm
Hi, I have read that scleroderma is not hereditary but have noticed in my research that alot of people have stated they have a family member with scleroderma...	madmonkey_76118	Jun 1, 2000 1:10 am
as far as i know just my mom...anyone else...i've often wondered about this too!<br><br>Diane...	blue-eyes-1012	Jun 2, 2000 7:50 pm
hi....sorry guys...i have been away for about a month tied up with business trip, adn a vacation!<br><br>lets keep posting and get some talking ...	blue-eyes-1012	Jun 2, 2000 7:52 pm
my mom this week just found out she may have a cyst on her ovary....we all know it may be nothing but with SD could be anything...would like to hear from ...	blue-eyes-1012	Jun 2, 2000 7:58 pm
Hi,<br> There is nobody else in my family that have scleroderma except for my sister, at least not now that we know of. Kelly....	KellyGirl28	Jun 3, 2000 12:19 am
Hi,<br> How is your mom doing with the SD? Did or does she take any medications/treatments?...	KellyGirl28	Jun 3, 2000 12:22 am
hi....<br><br>my mom has had sd for going on 16 years...yup she takes meds....a few new ones lately for blood pressure and estrogen. she ... knock on wood has...	blue-eyes-1012	Jun 3, 2000 4:13 pm
I recieved this in my e-mail....too late to catch the news in the cities listed, but maybe....plus some info on web site listed...<br><br>As part of its ...	blue-eyes-1012	Jun 7, 2000 2:38 pm
check out the newly updated site at <a href=http://www.scleroderma.org target=new>http://www.scleroderma.org</a>...	blue-eyes-1012	Jun 9, 2000 1:23 pm
i received this in an e-mail this morning -<br><br>It was just confirmed that Entertainment Tonight will be airing the Tylyn<br>John Feature at 7:30 p.m. EST,...	blue-eyes-1012	Jun 9, 2000 1:26 pm
read the article here:<br><br><a href=http://dailynews.yahoo.com/h/ap/20000607/hl/scleroderma_drug_1.html...	blue-eyes-1012	Jun 9, 2000 1:33 pm
SD Foundation is meeting at the Today show on Monday the 12th to promote June as SD Awareness month...if you can go adn meet up with them ...if not tune in to...	blue-eyes-1012	Jun 9, 2000 1:40 pm
Kelly'<br>Just wanted you to know that if you need someone to talk to I will listen. My sister died with SD 3 years ago. Hang in there....	Beanie_1959	Jun 18, 2000 2:57 am
My sister has had scleroderma for 10 years. It has affected her entire body. She has severe itching and we do not know what to do to make her more comfortable....	La_Dama99	Jun 19, 2000 10:37 am
my mom's legs used to itch....from the dryness of the skin...she used lotions or cold clothes...hope it helps!...	blue-eyes-1012	Jun 19, 2000 1:38 pm
My partner Michelle has severe itching as well. <br>We put cream all over her twice a day. As well, her doctor prescribed benadryl (?) or the itching. It seems...	theo_trish	Jun 19, 2000 2:04 pm
Hi Kelly,<br>My mom also died three years ago in July with SD.<br>If you ever want to talk to anyone I'm here too.<br>Like Beanie says, Hang in...	ShootingStars_2001 ShootingStar...	Jun 19, 2000 5:10 pm
Dear La_Dama<br>I am very sorry to hear about your sister. Try an alovera lotion and benedryl for the itching. How ever if she is on other meds. which I'm sure...	Beanie_1959	Jun 19, 2000 11:00 pm
How about a chat??? Are mornings and afternoons ok for anyone? let me know...evenings aren't the best for me, but we may be able to work something out...give...	blue-eyes-1012	Jun 21, 2000 1:04 pm
hi blue eyes<br>evenings are better for me or ant yime on mondays can't wait til the chat gets started....	Beanie_1959	Jun 25, 2000 5:53 pm
thought i'd pass this along to you...<br><br>The Scleroderma Federation was launched June 28, 2000, by the group formerly known as<br>the Scleroderma...	blue-eyes-1012	Jun 30, 2000 1:07 pm
Just wanted to let everyone know the story ahout Bob Sagot's sister is on again Monday night check your local listings. This is a very good movie as I havs...	Beanie_1959	Jul 8, 2000 8:39 pm
here's an inside scoop....just recieved in an e-mail...<br><br><This is a reminder that the ABC TV movie "For Hope" will be re-aired on Monday night, July...	blue-eyes-1012	Jul 9, 2000 2:40 pm
<a href=http://dailynews.yahoo.com/h/ap/20000709/hl/exp_fitness_women_1.html...	alby40	Jul 9, 2000 8:55 pm
Folks, I _have_ seen the movie (have a tape, too) and it can be quite frightening if you don't have a full understanding of the variability of scleroderma. I...	alby40	Jul 9, 2000 9:13 pm

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