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Scleroderma Friends and Family   Message List  
Reply | Forward Message #95 of 612 |
Re: help

have youtried any of the sites listed in the links section...thue may be able to
give you some answers. is there anyway she could come to the us for
treatment...take the meds home with her?




Wed Apr 12, 2000 1:24 pm

blue-eyes-1012
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Message #95 of 612 |
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try the other sd club....they would be able to help you...url is in the link section....<br><br>hang in there!...
blue-eyes-1012
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Apr 12, 2000
1:22 pm

have youtried any of the sites listed in the links section...thue may be able to give you some answers. is there anyway she could come to the us for...
blue-eyes-1012
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Apr 12, 2000
1:24 pm

hope we can be of some help to you...there are many sites listed in the links section to help you find more info...<br><br>welcome...
blue-eyes-1012
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Apr 12, 2000
1:26 pm

I added a URL to the link page. It's a site that offersinfo on Raynauds and SD. There are books, videos, and support...plus lots of info...you can check it out...
blue-eyes-1012
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Apr 12, 2000
1:45 pm

I was just visiting some of the url's fromthe link section...this one has added alot since i was there last...<br><br><a...
blue-eyes-1012
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Apr 12, 2000
1:50 pm

I sure would like to see more messages and I would like to get more information from those with personal experience. I will keep checking in. Hope you all are...
lamthey
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May 1, 2000
4:18 am

It is now May 20th. Is anyone around?...
KellyGirl28
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May 20, 2000
10:22 pm

Hi,<br> If anyone wants to chat via e-mail, please feel free to write at KellyGirl28@......
KellyGirl28
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May 20, 2000
10:27 pm

Hi, I have read that scleroderma is not hereditary but have noticed in my research that alot of people have stated they have a family member with scleroderma...
madmonkey_76118
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Jun 1, 2000
1:10 am

as far as i know just my mom...anyone else...i've often wondered about this too!<br><br>Diane...
blue-eyes-1012
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Jun 2, 2000
7:50 pm

hi....sorry guys...i have been away for about a month tied up with business trip, adn a vacation!<br><br>lets keep posting and get some talking ...
blue-eyes-1012
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Jun 2, 2000
7:52 pm

my mom this week just found out she may have a cyst on her ovary....we all know it may be nothing but with SD could be anything...would like to hear from ...
blue-eyes-1012
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Jun 2, 2000
7:58 pm

Hi,<br> There is nobody else in my family that have scleroderma except for my sister, at least not now that we know of. Kelly....
KellyGirl28
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Jun 3, 2000
12:19 am

Hi,<br> How is your mom doing with the SD? Did or does she take any medications/treatments?...
KellyGirl28
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Jun 3, 2000
12:22 am

hi....<br><br>my mom has had sd for going on 16 years...yup she takes meds....a few new ones lately for blood pressure and estrogen. she ... knock on wood has...
blue-eyes-1012
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Jun 3, 2000
4:13 pm

I recieved this in my e-mail....too late to catch the news in the cities listed, but maybe....plus some info on web site listed...<br><br>As part of its ...
blue-eyes-1012
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Jun 7, 2000
2:38 pm

check out the newly updated site at <a href=http://www.scleroderma.org target=new>http://www.scleroderma.org</a>...
blue-eyes-1012
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Jun 9, 2000
1:23 pm

i received this in an e-mail this morning -<br><br>It was just confirmed that Entertainment Tonight will be airing the Tylyn<br>John Feature at 7:30 p.m. EST,...
blue-eyes-1012
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Jun 9, 2000
1:26 pm

read the article here:<br><br><a href=http://dailynews.yahoo.com/h/ap/20000607/hl/scleroderma_drug_1.html...
blue-eyes-1012
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Jun 9, 2000
1:33 pm

SD Foundation is meeting at the Today show on Monday the 12th to promote June as SD Awareness month...if you can go adn meet up with them ...if not tune in to...
blue-eyes-1012
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Jun 9, 2000
1:40 pm

Kelly'<br>Just wanted you to know that if you need someone to talk to I will listen. My sister died with SD 3 years ago. Hang in there....
Beanie_1959
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Jun 18, 2000
2:57 am

My sister has had scleroderma for 10 years. It has affected her entire body. She has severe itching and we do not know what to do to make her more comfortable....
La_Dama99
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Jun 19, 2000
10:37 am

my mom's legs used to itch....from the dryness of the skin...she used lotions or cold clothes...hope it helps!...
blue-eyes-1012
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Jun 19, 2000
1:38 pm

My partner Michelle has severe itching as well. <br>We put cream all over her twice a day. As well, her doctor prescribed benadryl (?) or the itching. It seems...
theo_trish
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Jun 19, 2000
2:04 pm

Hi Kelly,<br>My mom also died three years ago in July with SD.<br>If you ever want to talk to anyone I'm here too.<br>Like Beanie says, Hang in...
ShootingStars_2001
ShootingStar...
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Jun 19, 2000
5:10 pm

Dear La_Dama<br>I am very sorry to hear about your sister. Try an alovera lotion and benedryl for the itching. How ever if she is on other meds. which I'm sure...
Beanie_1959
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Jun 19, 2000
11:00 pm

How about a chat??? Are mornings and afternoons ok for anyone? let me know...evenings aren't the best for me, but we may be able to work something out...give...
blue-eyes-1012
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Jun 21, 2000
1:04 pm

hi blue eyes<br>evenings are better for me or ant yime on mondays can't wait til the chat gets started....
Beanie_1959
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Jun 25, 2000
5:53 pm

thought i'd pass this along to you...<br><br>The Scleroderma Federation was launched June 28, 2000, by the group formerly known as<br>the Scleroderma...
blue-eyes-1012
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Jun 30, 2000
1:07 pm

Just wanted to let everyone know the story ahout Bob Sagot's sister is on again Monday night check your local listings. This is a very good movie as I havs...
Beanie_1959
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Jul 8, 2000
8:39 pm
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