sclerodermafriendsandfamily : Message: Re: My husband has diffused scleroderma

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Scleroderma Friends and Family

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Message #90 of 612 |

Re: My husband has diffused scleroderma

I just visited this site yesterday and I'm very
happy to hear that we are not the only ones going
through this disease. My husband has been going to the
Dr's for a year and he is on alot of medicine. He
takes at least 15 different medicines aday,and it makes
him very tired. We are going to try a new way about
treatment we are going to start seeing a herb Dr. to see if
he can help us. He has trouble breathing and is on a
breathing machine and it has attacked his lungs. I dont
know if you seen the Debra Duncan show on Scleroderma
but I did and they didn't have any men on the show it
kind of made me upset,It is so rare in men. He use to
be very healthy never went to the Dr. for anything
now he goes all of the time. We are trying to cope
but it is hard. if you understand what I'm going
through as a spouse of someone with Scleroderma please
respond back. Thank You!!

Wed Feb 23, 2000 11:22 pm

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tookie441999

tookie441999

Message #90 of 612 |

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just received this in an e-mail message...thought i would pass it along...<br><br><br>FYI, this is from Dorree Gurdak at our public relations firm, ...	blue-eyes-1012	Feb 3, 2000 7:22 pm
I just visited this site yesterday and I'm very happy to hear that we are not the only ones going through this disease. My husband has been going to the Dr's...	tookie441999	Feb 23, 2000 11:22 pm
hi, I'm new to this scleroderma. Any suggestions for dealing with the pain, the nausea and vomitting after eating?...	tcd50	Mar 8, 2000 5:11 pm
Hi!!<br> <br>This is an sos. i am writing to you from india. My sister-in-law who is 27 years old has been suffering from scleroderma for many years now but ...	sal_chat	Apr 4, 2000 5:20 pm
I am a new Internet user and have avoided it for years. On my first try, I was fortunate to find this club. My sister was just diagnosed. We do not know yet ...	krayola_1719	Apr 8, 2000 5:59 pm
try the other sd club....they would be able to help you...url is in the link section....<br><br>hang in there!...	blue-eyes-1012	Apr 12, 2000 1:22 pm
have youtried any of the sites listed in the links section...thue may be able to give you some answers. is there anyway she could come to the us for...	blue-eyes-1012	Apr 12, 2000 1:24 pm
hope we can be of some help to you...there are many sites listed in the links section to help you find more info...<br><br>welcome...	blue-eyes-1012	Apr 12, 2000 1:26 pm
I added a URL to the link page. It's a site that offersinfo on Raynauds and SD. There are books, videos, and support...plus lots of info...you can check it out...	blue-eyes-1012	Apr 12, 2000 1:45 pm
I was just visiting some of the url's fromthe link section...this one has added alot since i was there last...<br><br><a...	blue-eyes-1012	Apr 12, 2000 1:50 pm
I sure would like to see more messages and I would like to get more information from those with personal experience. I will keep checking in. Hope you all are...	lamthey	May 1, 2000 4:18 am
It is now May 20th. Is anyone around?...	KellyGirl28	May 20, 2000 10:22 pm
Hi,<br> If anyone wants to chat via e-mail, please feel free to write at KellyGirl28@......	KellyGirl28	May 20, 2000 10:27 pm
Hi, I have read that scleroderma is not hereditary but have noticed in my research that alot of people have stated they have a family member with scleroderma...	madmonkey_76118	Jun 1, 2000 1:10 am
as far as i know just my mom...anyone else...i've often wondered about this too!<br><br>Diane...	blue-eyes-1012	Jun 2, 2000 7:50 pm
hi....sorry guys...i have been away for about a month tied up with business trip, adn a vacation!<br><br>lets keep posting and get some talking ...	blue-eyes-1012	Jun 2, 2000 7:52 pm
my mom this week just found out she may have a cyst on her ovary....we all know it may be nothing but with SD could be anything...would like to hear from ...	blue-eyes-1012	Jun 2, 2000 7:58 pm
Hi,<br> There is nobody else in my family that have scleroderma except for my sister, at least not now that we know of. Kelly....	KellyGirl28	Jun 3, 2000 12:19 am
Hi,<br> How is your mom doing with the SD? Did or does she take any medications/treatments?...	KellyGirl28	Jun 3, 2000 12:22 am
hi....<br><br>my mom has had sd for going on 16 years...yup she takes meds....a few new ones lately for blood pressure and estrogen. she ... knock on wood has...	blue-eyes-1012	Jun 3, 2000 4:13 pm
I recieved this in my e-mail....too late to catch the news in the cities listed, but maybe....plus some info on web site listed...<br><br>As part of its ...	blue-eyes-1012	Jun 7, 2000 2:38 pm
check out the newly updated site at <a href=http://www.scleroderma.org target=new>http://www.scleroderma.org</a>...	blue-eyes-1012	Jun 9, 2000 1:23 pm
i received this in an e-mail this morning -<br><br>It was just confirmed that Entertainment Tonight will be airing the Tylyn<br>John Feature at 7:30 p.m. EST,...	blue-eyes-1012	Jun 9, 2000 1:26 pm
read the article here:<br><br><a href=http://dailynews.yahoo.com/h/ap/20000607/hl/scleroderma_drug_1.html...	blue-eyes-1012	Jun 9, 2000 1:33 pm
SD Foundation is meeting at the Today show on Monday the 12th to promote June as SD Awareness month...if you can go adn meet up with them ...if not tune in to...	blue-eyes-1012	Jun 9, 2000 1:40 pm
Kelly'<br>Just wanted you to know that if you need someone to talk to I will listen. My sister died with SD 3 years ago. Hang in there....	Beanie_1959	Jun 18, 2000 2:57 am
My sister has had scleroderma for 10 years. It has affected her entire body. She has severe itching and we do not know what to do to make her more comfortable....	La_Dama99	Jun 19, 2000 10:37 am
my mom's legs used to itch....from the dryness of the skin...she used lotions or cold clothes...hope it helps!...	blue-eyes-1012	Jun 19, 2000 1:38 pm
My partner Michelle has severe itching as well. <br>We put cream all over her twice a day. As well, her doctor prescribed benadryl (?) or the itching. It seems...	theo_trish	Jun 19, 2000 2:04 pm
Hi Kelly,<br>My mom also died three years ago in July with SD.<br>If you ever want to talk to anyone I'm here too.<br>Like Beanie says, Hang in...	ShootingStars_2001 ShootingStar...	Jun 19, 2000 5:10 pm

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