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Scleroderma Friends and Family   Message List  
Reply | Forward Message #85 of 612 |
questions questions questions

my husband has been diagnosed with morphea and or
limited scleroderma. We have not been able to get much
support from medical establishment in our area. I believe
that the symptoms he has been having lately are
related to the sclerodema but cannot get confirmation. He
has seen a specialist about a year ago but Dr. has
since relocated to another state. Can anyone be of any
assistance




Tue Jan 4, 2000 12:32 am

abramspap
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Message #85 of 612 |
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Well that is why we have boards such as this one.<br><br>The one thing you can do is while you are in the presents of your friend FORGET that she may or may...
shul_1999
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Dec 16, 1999
12:10 pm

my husband has been diagnosed with morphea and or limited scleroderma. We have not been able to get much support from medical establishment in our area. I...
abramspap
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Jan 4, 2000
12:32 am

Well that is a shame that the doctor relocated and now you have to find yet another one that understands Scleroderma. I personally have diffused Scleroderma...
shul_1999
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Jan 6, 2000
12:07 am

hi everyone....just wanted to say i'm sorry for leaving you all hanging....got so tied up with stuff through the holidays and stuff....sigh....anyway....hope ...
blue-eyes-1012
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Jan 12, 2000
9:18 pm

Hello, my name is Amanda and I am 19 years old. I have linear scleroderma and was diagnosed when I was 13. It is really great to know that there are support...
Allen_gal
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Jan 24, 2000
5:14 am

just received this in an e-mail message...thought i would pass it along...<br><br><br>FYI, this is from Dorree Gurdak at our public relations firm, ...
blue-eyes-1012
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Feb 3, 2000
7:22 pm

I just visited this site yesterday and I'm very happy to hear that we are not the only ones going through this disease. My husband has been going to the Dr's...
tookie441999
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Feb 23, 2000
11:22 pm

hi, I'm new to this scleroderma. Any suggestions for dealing with the pain, the nausea and vomitting after eating?...
tcd50
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Mar 8, 2000
5:11 pm

Hi!!<br> <br>This is an sos. i am writing to you from india. My sister-in-law who is 27 years old has been suffering from scleroderma for many years now but ...
sal_chat
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Apr 4, 2000
5:20 pm

I am a new Internet user and have avoided it for years. On my first try, I was fortunate to find this club. My sister was just diagnosed. We do not know yet ...
krayola_1719
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Apr 8, 2000
5:59 pm

try the other sd club....they would be able to help you...url is in the link section....<br><br>hang in there!...
blue-eyes-1012
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Apr 12, 2000
1:22 pm

have youtried any of the sites listed in the links section...thue may be able to give you some answers. is there anyway she could come to the us for...
blue-eyes-1012
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Apr 12, 2000
1:24 pm

hope we can be of some help to you...there are many sites listed in the links section to help you find more info...<br><br>welcome...
blue-eyes-1012
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Apr 12, 2000
1:26 pm

I added a URL to the link page. It's a site that offersinfo on Raynauds and SD. There are books, videos, and support...plus lots of info...you can check it out...
blue-eyes-1012
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Apr 12, 2000
1:45 pm

I was just visiting some of the url's fromthe link section...this one has added alot since i was there last...<br><br><a...
blue-eyes-1012
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Apr 12, 2000
1:50 pm

I sure would like to see more messages and I would like to get more information from those with personal experience. I will keep checking in. Hope you all are...
lamthey
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May 1, 2000
4:18 am

It is now May 20th. Is anyone around?...
KellyGirl28
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May 20, 2000
10:22 pm

Hi,<br> If anyone wants to chat via e-mail, please feel free to write at KellyGirl28@......
KellyGirl28
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May 20, 2000
10:27 pm

Hi, I have read that scleroderma is not hereditary but have noticed in my research that alot of people have stated they have a family member with scleroderma...
madmonkey_76118
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Jun 1, 2000
1:10 am

as far as i know just my mom...anyone else...i've often wondered about this too!<br><br>Diane...
blue-eyes-1012
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Jun 2, 2000
7:50 pm

hi....sorry guys...i have been away for about a month tied up with business trip, adn a vacation!<br><br>lets keep posting and get some talking ...
blue-eyes-1012
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Jun 2, 2000
7:52 pm

my mom this week just found out she may have a cyst on her ovary....we all know it may be nothing but with SD could be anything...would like to hear from ...
blue-eyes-1012
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Jun 2, 2000
7:58 pm

Hi,<br> There is nobody else in my family that have scleroderma except for my sister, at least not now that we know of. Kelly....
KellyGirl28
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Jun 3, 2000
12:19 am

Hi,<br> How is your mom doing with the SD? Did or does she take any medications/treatments?...
KellyGirl28
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Jun 3, 2000
12:22 am

hi....<br><br>my mom has had sd for going on 16 years...yup she takes meds....a few new ones lately for blood pressure and estrogen. she ... knock on wood has...
blue-eyes-1012
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Jun 3, 2000
4:13 pm

I recieved this in my e-mail....too late to catch the news in the cities listed, but maybe....plus some info on web site listed...<br><br>As part of its ...
blue-eyes-1012
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Jun 7, 2000
2:38 pm

check out the newly updated site at <a href=http://www.scleroderma.org target=new>http://www.scleroderma.org</a>...
blue-eyes-1012
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Jun 9, 2000
1:23 pm

i received this in an e-mail this morning -<br><br>It was just confirmed that Entertainment Tonight will be airing the Tylyn<br>John Feature at 7:30 p.m. EST,...
blue-eyes-1012
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Jun 9, 2000
1:26 pm

read the article here:<br><br><a href=http://dailynews.yahoo.com/h/ap/20000607/hl/scleroderma_drug_1.html...
blue-eyes-1012
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Jun 9, 2000
1:33 pm

SD Foundation is meeting at the Today show on Monday the 12th to promote June as SD Awareness month...if you can go adn meet up with them ...if not tune in to...
blue-eyes-1012
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Jun 9, 2000
1:40 pm
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