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Reply | Forward Message #62 of 612 |
hi...

just wanted to let you guys know...i have been
mia for a bit, cause our phone line has been giving
us problems, and hasn't gotten fixed yet...sometimes
i can't connect on-line...so when it's fixed i hope
to see you all soon!




Fri Jul 30, 1999 12:10 pm

blue-eyes-1012
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Message #62 of 612 |
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mondays at 2 pm EST and Wed. at 8pm Est...
blue-eyes-1012
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Jul 30, 1999
12:09 pm

just wanted to let you guys know...i have been mia for a bit, cause our phone line has been giving us problems, and hasn't gotten fixed yet...sometimes i can't...
blue-eyes-1012
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Jul 30, 1999
12:10 pm

My fiance's mother recently passed away because of complications from Scleroderma. The circulation in her feet was so bad that they had to amputate both of her...
aaronunnasch
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Aug 18, 1999
2:58 am

so nice to meet you...glad you decided to join our club. glad to have you...So sorry to hear about your loss....
blue-eyes-1012
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Aug 19, 1999
1:50 pm

phone line is fixed!!!!! finally! so be watching for new things soon!!! Don't forget about our chat times!!...
blue-eyes-1012
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Aug 19, 1999
1:51 pm

Aaron, I am also a new member, my sister has scleroderma, before I go any further I am sorry for the loss of your future Mother-in Law. It seems so tragic that...
peaches_1_49
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Aug 22, 1999
7:00 pm

Having recently lost my mother to CREST, I really do know how you feel. Scleroderma is such a frustrating disease, as really only the symptoms can be treated....
jgilnish
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Aug 24, 1999
3:41 am

thought you could all relate to this...about a 2 weeks ago now, on a sunday afternoon, i got a phone call from my dad...may not sound weird to you...but dad...
blue-eyes-1012
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Aug 24, 1999
1:38 pm

don't forget chat tonight at 8pm EST...I'm not sure if i'll be here on time, have to work a little later than normal tonihgt...but will try to catch y'all.......
blue-eyes-1012
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Sep 1, 1999
1:23 pm

I just recieved this in an e-mail, and thought maybe you would also like to know about this...may be a chance to get some unanswered questions ...
blue-eyes-1012
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Sep 2, 1999
12:44 pm

Hello, I just wanted to stop by to let all of you know that there is a new club for Scleroderma. The link is below... It is there for all to join who have an...
lizzythecamgirl
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Sep 10, 1999
2:42 am

Thanks Lizzy!!!...
blue-eyes-1012
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Sep 10, 1999
4:51 pm

My mother-in-law has scleroderma and is at a stage very close to renal crisis. Of course this worries her tremendously. Does anyone know a place on the web...
emills28
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Sep 16, 1999
2:21 pm

eric...i'll see if i can find something...anyone else know of any places?...
blue-eyes-1012
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Sep 19, 1999
9:13 pm

On Monday, Sept. 20th, the new Dr. Joy Browne Show will feature two guests with<br> scleroderma -- Susan (newly diagnosed with systemic SD) and Terry (who ...
blue-eyes-1012
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Sep 20, 1999
1:08 pm

Please join us today (Monday, Oct. 4) at 10 p.m. ET, when our scheduled chat guest will be<br>world-renowned scleroderma researcher James Seibold, ...
blue-eyes-1012
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Oct 4, 1999
7:27 pm

I received this e-mail...thought you all might like to beaware....have a great day...<br><br><br>VCR ALERT!!<br><br>Our very own star of the computer screen --...
blue-eyes-1012
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Oct 18, 1999
12:51 pm

I too am very new to this support group. My husband has scleroderma. He too has been diagnosed this past wednesday at MUSC in Charleston, SC. They have a ...
libra43_99
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Oct 23, 1999
11:47 pm

Will check the chat room every evening <br><br>Willywatt...
willywatt
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Nov 15, 1999
1:09 am

MY BEST FRIEND OF 22 YEARS HAS SCLERODERMA. I WAS LOOKING FOR SOMEONE WHO IS GOING THROUGH THE SAME PAIN THAT I AM. I'M NOT READY TO LET MY BEST FRIEND GO. IF ...
pandora1022
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Nov 26, 1999
10:12 pm

Please stand by your friend. I am a person with Scleroderma and when I found out about it my husband at that time walked out. It destroyed the family. He was...
shul_1999
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Dec 2, 1999
3:35 am

thank you for taking the time and reading my short story about my best friend. the is nothing in this world that I would not do for her. right now i'm having a...
pandora1022
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Dec 12, 1999
12:09 am

hi aaron....my mother passed away 7 years ago due to complications from scleroderma....she was very ill for about a year before she was diagonsed w/scleroderma...
hollyannp
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Dec 14, 1999
4:20 pm

Well that is why we have boards such as this one.<br><br>The one thing you can do is while you are in the presents of your friend FORGET that she may or may...
shul_1999
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Dec 16, 1999
12:10 pm

my husband has been diagnosed with morphea and or limited scleroderma. We have not been able to get much support from medical establishment in our area. I...
abramspap
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Jan 4, 2000
12:32 am

Well that is a shame that the doctor relocated and now you have to find yet another one that understands Scleroderma. I personally have diffused Scleroderma...
shul_1999
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Jan 6, 2000
12:07 am

hi everyone....just wanted to say i'm sorry for leaving you all hanging....got so tied up with stuff through the holidays and stuff....sigh....anyway....hope ...
blue-eyes-1012
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Jan 12, 2000
9:18 pm

Hello, my name is Amanda and I am 19 years old. I have linear scleroderma and was diagnosed when I was 13. It is really great to know that there are support...
Allen_gal
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Jan 24, 2000
5:14 am

just received this in an e-mail message...thought i would pass it along...<br><br><br>FYI, this is from Dorree Gurdak at our public relations firm, ...
blue-eyes-1012
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Feb 3, 2000
7:22 pm

I just visited this site yesterday and I'm very happy to hear that we are not the only ones going through this disease. My husband has been going to the Dr's...
tookie441999
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Feb 23, 2000
11:22 pm
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