Is there a regular time for friends and family chat? I do not see it on the calender and I would like to let some of my friends and family, whom I have invited...
just wanted to let you guys know...i have been mia for a bit, cause our phone line has been giving us problems, and hasn't gotten fixed yet...sometimes i can't...
My fiance's mother recently passed away because of complications from Scleroderma. The circulation in her feet was so bad that they had to amputate both of her...
Aaron, I am also a new member, my sister has scleroderma, before I go any further I am sorry for the loss of your future Mother-in Law. It seems so tragic that...
Having recently lost my mother to CREST, I really do know how you feel. Scleroderma is such a frustrating disease, as really only the symptoms can be treated....
thought you could all relate to this...about a 2 weeks ago now, on a sunday afternoon, i got a phone call from my dad...may not sound weird to you...but dad...
don't forget chat tonight at 8pm EST...I'm not sure if i'll be here on time, have to work a little later than normal tonihgt...but will try to catch y'all.......
Hello, I just wanted to stop by to let all of you know that there is a new club for Scleroderma. The link is below... It is there for all to join who have an...
My mother-in-law has scleroderma and is at a stage very close to renal crisis. Of course this worries her tremendously. Does anyone know a place on the web...
On Monday, Sept. 20th, the new Dr. Joy Browne Show will feature two guests with<br> scleroderma -- Susan (newly diagnosed with systemic SD) and Terry (who ...
I received this e-mail...thought you all might like to beaware....have a great day...<br><br><br>VCR ALERT!!<br><br>Our very own star of the computer screen --...
I too am very new to this support group. My husband has scleroderma. He too has been diagnosed this past wednesday at MUSC in Charleston, SC. They have a ...
MY BEST FRIEND OF 22 YEARS HAS SCLERODERMA. I WAS LOOKING FOR SOMEONE WHO IS GOING THROUGH THE SAME PAIN THAT I AM. I'M NOT READY TO LET MY BEST FRIEND GO. IF ...
Please stand by your friend. I am a person with Scleroderma and when I found out about it my husband at that time walked out. It destroyed the family. He was...
thank you for taking the time and reading my short story about my best friend. the is nothing in this world that I would not do for her. right now i'm having a...
hi aaron....my mother passed away 7 years ago due to complications from scleroderma....she was very ill for about a year before she was diagonsed w/scleroderma...
Well that is why we have boards such as this one.<br><br>The one thing you can do is while you are in the presents of your friend FORGET that she may or may...
my husband has been diagnosed with morphea and or limited scleroderma. We have not been able to get much support from medical establishment in our area. I...
Well that is a shame that the doctor relocated and now you have to find yet another one that understands Scleroderma. I personally have diffused Scleroderma...
hi everyone....just wanted to say i'm sorry for leaving you all hanging....got so tied up with stuff through the holidays and stuff....sigh....anyway....hope ...
Hello, my name is Amanda and I am 19 years old. I have linear scleroderma and was diagnosed when I was 13. It is really great to know that there are support...
just received this in an e-mail message...thought i would pass it along...<br><br><br>FYI, this is from Dorree Gurdak at our public relations firm, ...
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