--- In sclerodermafriendsandfamily@yahoogroups.com, Candy Richards
<candy_rkr@...> wrote:
>
> Mitzi
> Hi. i am so sorry to hear about your Mom. My sister died of SD 10
years ago. She had the pulmonary hypertension, I really don't
remember to much she had so much wrong. I do remember she had a hard
time breathing and was on oxygen. A week after she died my brother in
law got the papers where they had excepted her for a lung transplant.
What sticks in my mind is how she lay in a coma in the hospital in
ICU for a week before she died. The Dr. told us the lung transplant
wouldn't have done her any good anyway. It is sad that this disease
effects so many people yet nobody knows about it unless it effects
them in someway. I remember the day they diagniosed her I cried like
a baby i knew what she was up against as I was a CNA and was in a
nursing home with a patient who had had it since she was16. I get the
different types mixed up my sister had the one that not only effected
her skin and joints but her organs too. My sisters best friend ask me
about it after she was diagnoised
> and I remember telling her if my sister lasted 5 years it would be
a miracle. She lasted 4 my sister was 47 years old when she died. If
you do a search for SD on line ti can probably answer alot of your
question. Again I am sorry. I will keep your Mom in my prayers. may
God be wit you
>
> Candy
>
> fanchermitzi <fanchermitzi@...> wrote:
> I just wanted to see if some of yall have pulmonary
hypertention.
> My mama goes monday to have a arteriergram done. That is to see how
> much pressure she has in lungs I think. I am just worried about
her.
> She has had crest scleroderma for 26 years and has always been real
> upbeat nomatter what came her way. I just noticed she has had a
cough
> and is now coughing stuff up. not much just a little. So I was
trying
> to see if some of yall might could give me some advice on it.
Thanks
> Mitzi........ from alabama ...... lol...
>
>
>
>
>
>
> ---------------------------------
> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.
Try it now.
>
> [Non-text portions of this message have been removed]
>
Thanks Candy for all your information. I will let you know how
mama comes out with her test today. Mitzi