Mitzi
Hi. i am so sorry to hear about your Mom. My sister died of SD 10 years ago.
She had the pulmonary hypertension, I really don't remember to much she had so
much wrong. I do remember she had a hard time breathing and was on oxygen. A
week after she died my brother in law got the papers where they had excepted her
for a lung transplant. What sticks in my mind is how she lay in a coma in the
hospital in ICU for a week before she died. The Dr. told us the lung transplant
wouldn't have done her any good anyway. It is sad that this disease effects so
many people yet nobody knows about it unless it effects them in someway. I
remember the day they diagniosed her I cried like a baby i knew what she was up
against as I was a CNA and was in a nursing home with a patient who had had it
since she was16. I get the different types mixed up my sister had the one that
not only effected her skin and joints but her organs too. My sisters best friend
ask me about it after she was diagnoised
and I remember telling her if my sister lasted 5 years it would be a miracle.
She lasted 4 my sister was 47 years old when she died. If you do a search for
SD on line ti can probably answer alot of your question. Again I am sorry. I
will keep your Mom in my prayers. may God be wit you

Candy

fanchermitzi <fanchermitzi@...> wrote:
I just wanted to see if some of yall have pulmonary hypertention.
My mama goes monday to have a arteriergram done. That is to see how
much pressure she has in lungs I think. I am just worried about her.
She has had crest scleroderma for 26 years and has always been real
upbeat nomatter what came her way. I just noticed she has had a cough
and is now coughing stuff up. not much just a little. So I was trying
to see if some of yall might could give me some advice on it. Thanks
Mitzi........ from alabama ...... lol...






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