First let me express my sympathy to you and your
family jgilinsh! and we hope that you will continue to
lend support here, I can tell you have so much to
give...<br><br>and click711...christine...stay strong! We're here to
listen and to help...I hope everyone knows
that!<br><br>My mom's started out the same way...she was alwyas
cold...blue and purple...and her skin is like smooth
leather...<br><br>I have to admitt...I'm not sure what "type" my
mom's is...she has been diagnosed with it for 15
years...and seems to be pretty stable...for that we thank god
everyday!<br><br>my phone line has been acting up lately...so i'm on
line when i can...hope to see both of you soon...maybe
we can meet to chat...will do some club planning and
let you all know!<br><br>love,<br>Diane
My mom passed away on June 19 after an courageous battle with CREST Syndrome. She was diagnosed in 1990, and did quite well for a few years. Two years ago she ...
First let me express my sympathy to you and your family jgilinsh! and we hope that you will continue to lend support here, I can tell you have so much to ...
Hi Christine,<br>I just found this site this morning & saw your message. I think I can understand what you & your daughter are going through. My daughter, now...
Hi again<br>I'm new to this program, and not that great on the computer period. Some how I sent the previous msg. befor signing it. Also I probably will not be...
Hi friends and family! I'm always on the lookout for pertinent articles in the "News" area at the Scleroderma Support club and thought you'd be interested in ...
Is there a regular time for friends and family chat? I do not see it on the calender and I would like to let some of my friends and family, whom I have invited...
just wanted to let you guys know...i have been mia for a bit, cause our phone line has been giving us problems, and hasn't gotten fixed yet...sometimes i can't...
My fiance's mother recently passed away because of complications from Scleroderma. The circulation in her feet was so bad that they had to amputate both of her...
Aaron, I am also a new member, my sister has scleroderma, before I go any further I am sorry for the loss of your future Mother-in Law. It seems so tragic that...
Having recently lost my mother to CREST, I really do know how you feel. Scleroderma is such a frustrating disease, as really only the symptoms can be treated....
thought you could all relate to this...about a 2 weeks ago now, on a sunday afternoon, i got a phone call from my dad...may not sound weird to you...but dad...
don't forget chat tonight at 8pm EST...I'm not sure if i'll be here on time, have to work a little later than normal tonihgt...but will try to catch y'all.......
Hello, I just wanted to stop by to let all of you know that there is a new club for Scleroderma. The link is below... It is there for all to join who have an...
My mother-in-law has scleroderma and is at a stage very close to renal crisis. Of course this worries her tremendously. Does anyone know a place on the web...
On Monday, Sept. 20th, the new Dr. Joy Browne Show will feature two guests with<br> scleroderma -- Susan (newly diagnosed with systemic SD) and Terry (who ...
I received this e-mail...thought you all might like to beaware....have a great day...<br><br><br>VCR ALERT!!<br><br>Our very own star of the computer screen --...
I too am very new to this support group. My husband has scleroderma. He too has been diagnosed this past wednesday at MUSC in Charleston, SC. They have a ...
MY BEST FRIEND OF 22 YEARS HAS SCLERODERMA. I WAS LOOKING FOR SOMEONE WHO IS GOING THROUGH THE SAME PAIN THAT I AM. I'M NOT READY TO LET MY BEST FRIEND GO. IF ...
Please stand by your friend. I am a person with Scleroderma and when I found out about it my husband at that time walked out. It destroyed the family. He was...
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