--- In sclerodermafriendsandfamily@yahoogroups.com, "diane"
<dmcg1012@...> wrote:
>
>
> Good evening everyone!
>
> thanks so much for your posting Debbie - i have been debating for
some
> time now about the future of this group. let's see if we can't
shake up
> the coals a little bit and get the fire burning again.
>
> i'm asking that each of you respond to this email, or go to the
group
> and post a message - a roll call. tell us what is going on with
you,
> any new news?
>
> I'll get us started -
>
> My mom SD wise has been pretty ok recently. the breast cancer seems
to
> be behind us too - almost 4 years cancer free now.
>
> the newest "thing" seems to be a couple of little bumps that look
like a
> bug bite, but has no entrance point...on her leg. so we are
watching
> that closely - as you all know, it can take forever for these
things to
> go away.
>
> the only other thing recently was microscopic blood in her urine -
tests
> show some gravel in her kidneys - so good to know it's not SD
related,
> nor is it anything to worry about.
>
> it's been pretty cold here lately - so she has been hibernating.
>
> i've been busy - i'm now teaching almost full time...life is busy
for me
> and my DH.
>
> My sister had a baby a few months ago, and my mom has been excited
and
> frustrated at the same time - as much as she wants to , she can't
change
> a diaper - good and bad right!? but she can hold him and feed him,
and
> spoil him just the same. they just don't live close enough for
her...or
> aunt diane!
>
> so - that's where i'm at in a really small nutshell -
>
> drop us all a note and let us know what you've been up to...
>
> i pray for you all everyday - even though we have been REALLY quiet
> lately, you are all in my thoughts and prayers...
>
> although i haven't posted in awhile, i have been busy on our
behalf. i
> have "spread the word" about our group to many SD sites, so we are
> listed in many places...and letting people know we are still open
for
> business...
>
> can't wait to hear from you all -
>
> best wishes -
>
> diane
>
> SO SORRY I HAVEN'T POSTED IN WHAT TWO YEARS MY SON WHO HAD SD HAS
DIED FROM IT,ACTUALLY 2 YEARS FROM 02/21/05. BUT I STILL WRITE AND
SEND NUMEROUS LETTERS TO HOSPITALS AND SENATORS FOR MORE RESEARCH.SO
I AM NOT GONE JUST OTHERWISE FOCUSED.
>
> [Non-text portions of this message have been removed]
>