Hi Terri welcome I am a caregiver and mother of my daughter who has
sclerodermana and rhynauds she got diagnosed 5 and half years ago she is now 30
and has 2 beautiful grand daughters she had chemo last year and it brought up
her lung compasity up 3%. She is the only daughter I have and I love her with
all my heart and it scares me because I don't want to loose her. I want to thank
you for emailing me and u are always welcome to email me anytime. I do have msn
and it is the same addy as this email. You are welcome to add me to msn
messenger also. Do take care Terri and I know it is really a mind puzzling
situation and hopin to find a cure for this diease and I hope that they do. Till
then god bless you give mom a hug everyday hon she needs it tell her u love her
every day. My mother passed away in my arms in 2001 from cancer and I know it is
difficult u need someone to talk to to let out how u r feeling hon because I did
and it helped but the hardest one is that when you have only
one daughter and no other children it is real hard on me. Till then may god
bless you and your mother. Love trudyrose smith.

sessions42000 <msessions@...> wrote:Hi, I am a new member. My Mother was
diagnosed with systemic,
diffuse scleroderma. We received the diagnosis in March. At that
time the fibrosis had started in her lungs. Last week the x-rays
showed that it has progressed and she is on oxygen 24/7. The doctors
are hesitant to tell us what to expect, and from everything I have
read I know that there are not a lot of answers. If anyone out there
has gone through this with someone and can offer any information I
would be very grateful. Thank you.
Terri



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