hello diana thank you for the letter I was so intrigued that you send me this
letter. I am a caregiver and mother of my daughter who has scleroderma and
rhynauds.she is 30 and has 2 girls. I know it is hard havin to go through all
this but we are strong.You and I are strong we both r lookin out for our moms. I
took care of my mom for 10 yrs she got diagnosed with lung cancer and passed
away in 2001 in my arms. I will never forget that because i was the one she
looked at me with tears in her eyes and i told her i loved her then she went to
sleep. I am so grateful that she is now in gods hands and no longer in pain. Now
i go through missin my mom i loved her so much. I want you to be strong. My
daughter Jackie got diagnosed with scleroderma and rhynauds 5 yrs ago. she
didn't even know she had it. Now i have my baby to think about she is the only
child i had and it is very hard on me Diane. Of course there is lots of anger.
But that is part of the process. I just wish it was me instead
of my daughter.She was put on Chemo to see if it would help her she had her
last one at endin of Feb. Her lung compacity went up 3% but she goes to
Vancouver,B.C. to see if the chemo helped her. I hate this why does it have to
happen to good people and not bad. It really hurts Diane. I have boyfriend who
is also terminally ill. I love him so much and he just told me he wants me to
leave it is hard because i had 3 yrs with him. He said that my daughter comes
first i know but why is it that the 2 people I love is terminally ill. I am
takin care of them both just like my late mother. I love them. Well Diane thank
you for the e mail keep in touch because i need someone to talk to because i
don't have no support as I am doing this on my own. God bless you each and every
day and your mother. Take care now. Till then whenever you see a red rose always
think of me because that red rose is me. Bye for now. Trudy Rose Smith mother of
dauhter who has scleroderma and rhynauds.

blue-eyes-1012 <no_reply@yahoogroups.com> wrote:hi everyone...not sure if this
was posted or emailed to you...so i
wanted to send it out again! if it si a repeat sorry!

D


*************
hi everyone!

first let me begin by apologizing! i have not paid much attention to
you and the group lately! life has a way off stirring up
whirlwinds...and i had some trouble with my yahoo account...long
story, but i couldn't log in for a long time....

i've been working at the club site...i'm sorry that there were some
negative...spam posts...i've erased them, and i think i've fixed it so
it won't happen again...i also got rid of some bad links...did some
maintaince...

welcome to any new members that may have joined since i've been MIA...

so, let's start fresh! i'm back...and hope i haven't offended to many
of you!

my mom (SD for 20 years) is doing well...i think the last time i was
here was when we just found out she had stage 1 breast
cancer....sigh...thank god that all went well...she had a masectomy,
they watched her like a hawk, all is well....SD included...and is
cancer free!! right now the only wrinkle she seems to be having is
some low potassium...more blood work tomorrow...may have been just a
fluke...

so, i hope you are all well...and invite you all to post and "let me
have it!" i really am so sorry...it's not like me to be gone for so
long....lots happening....dealing with the breast cancer...my BIL is
in iraq....and through a zillion other life events into the
mix....sigh...don't mean to complain.....

so....let me know how you all have been...how are the SDer's doing?
actually...i have an 18 year old friend who has all the signs and
symptoms of SD...waiting for final test results...she is scared...and
freaked out...when things are confirmed...i may be asking for advice
and support that i can pass along to her...

hope that everything is going well, adn once again...i'm sooo sorry!

diane (blue-eyes-1012)


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