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Scleroderma Friends and Family   Message List  
Reply | Forward Message #48 of 612 |
Re: looking for...

thanks i'll try that! Is there anything that can be snail mailed to my mom??




Wed Jun 16, 1999 11:10 pm

blue-eyes-1012
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Message #48 of 612 |
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Are you looking for a scleroderma newsletter? If you're not already a member of the Scleroderma Foundation, join! Their excellent letter is "The Newsline."...
alby40
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Jun 10, 1999
4:41 pm

thanks i'll try that! Is there anything that can be snail mailed to my mom??...
blue-eyes-1012
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Jun 16, 1999
11:10 pm

See pics of Scleroderma Foundation members and friends who gained face-time for SD awareness this morning on the Today show at <a...
alby40
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Jun 17, 1999
11:38 pm

just wanted to let you all know that i have been having problems with the phone line, that's why i haven't been in lately...hope to have it fixed soon, so we...
blue-eyes-1012
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Jun 23, 1999
1:50 pm

Hi, my name is Christine. I'm the mother of two wonderful daughters. My youngest daughter will be heading off to school in Florida this fall(yikes! It's so far...
click711
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Jun 27, 1999
4:26 pm

My mom passed away on June 19 after an courageous battle with CREST Syndrome. She was diagnosed in 1990, and did quite well for a few years. Two years ago she ...
jgilnish
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Jul 2, 1999
1:18 am

First let me express my sympathy to you and your family jgilinsh! and we hope that you will continue to lend support here, I can tell you have so much to ...
blue-eyes-1012
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Jul 3, 1999
8:30 pm

have you checked out the links section of the club...maybe there is some information that you will find useful!...
blue-eyes-1012
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Jul 3, 1999
8:31 pm

Hi Christine,<br>I just found this site this morning & saw your message. I think I can understand what you & your daughter are going through. My daughter, now...
flofarkle
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Jul 15, 1999
7:02 pm

Hi again<br>I'm new to this program, and not that great on the computer period. Some how I sent the previous msg. befor signing it. Also I probably will not be...
flofarkle
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Jul 15, 1999
7:15 pm

Hi friends and family! I'm always on the lookout for pertinent articles in the "News" area at the Scleroderma Support club and thought you'd be interested in ...
alby40
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Jul 17, 1999
11:40 am

<a href=http://clubs.yahoo.com/clubs/sclerodermasupport target=new>http://clubs.yahoo.com/clubs/sclerodermasupport</a>...
alby40
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Jul 28, 1999
4:15 pm

Please post your chat schedule again? Thanks!!...
alby40
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Jul 28, 1999
4:18 pm

Is there a regular time for friends and family chat? I do not see it on the calender and I would like to let some of my friends and family, whom I have invited...
Campy54
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Jul 30, 1999
1:32 am

mondays at 2 pm EST and Wed. at 8pm Est...
blue-eyes-1012
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Jul 30, 1999
12:09 pm

just wanted to let you guys know...i have been mia for a bit, cause our phone line has been giving us problems, and hasn't gotten fixed yet...sometimes i can't...
blue-eyes-1012
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Jul 30, 1999
12:10 pm

My fiance's mother recently passed away because of complications from Scleroderma. The circulation in her feet was so bad that they had to amputate both of her...
aaronunnasch
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Aug 18, 1999
2:58 am

so nice to meet you...glad you decided to join our club. glad to have you...So sorry to hear about your loss....
blue-eyes-1012
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Aug 19, 1999
1:50 pm

phone line is fixed!!!!! finally! so be watching for new things soon!!! Don't forget about our chat times!!...
blue-eyes-1012
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Aug 19, 1999
1:51 pm

Aaron, I am also a new member, my sister has scleroderma, before I go any further I am sorry for the loss of your future Mother-in Law. It seems so tragic that...
peaches_1_49
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Aug 22, 1999
7:00 pm

Having recently lost my mother to CREST, I really do know how you feel. Scleroderma is such a frustrating disease, as really only the symptoms can be treated....
jgilnish
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Aug 24, 1999
3:41 am

thought you could all relate to this...about a 2 weeks ago now, on a sunday afternoon, i got a phone call from my dad...may not sound weird to you...but dad...
blue-eyes-1012
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Aug 24, 1999
1:38 pm

don't forget chat tonight at 8pm EST...I'm not sure if i'll be here on time, have to work a little later than normal tonihgt...but will try to catch y'all.......
blue-eyes-1012
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Sep 1, 1999
1:23 pm

I just recieved this in an e-mail, and thought maybe you would also like to know about this...may be a chance to get some unanswered questions ...
blue-eyes-1012
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Sep 2, 1999
12:44 pm

Hello, I just wanted to stop by to let all of you know that there is a new club for Scleroderma. The link is below... It is there for all to join who have an...
lizzythecamgirl
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Sep 10, 1999
2:42 am

Thanks Lizzy!!!...
blue-eyes-1012
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Sep 10, 1999
4:51 pm

My mother-in-law has scleroderma and is at a stage very close to renal crisis. Of course this worries her tremendously. Does anyone know a place on the web...
emills28
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Sep 16, 1999
2:21 pm

eric...i'll see if i can find something...anyone else know of any places?...
blue-eyes-1012
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Sep 19, 1999
9:13 pm

On Monday, Sept. 20th, the new Dr. Joy Browne Show will feature two guests with<br> scleroderma -- Susan (newly diagnosed with systemic SD) and Terry (who ...
blue-eyes-1012
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Sep 20, 1999
1:08 pm

Please join us today (Monday, Oct. 4) at 10 p.m. ET, when our scheduled chat guest will be<br>world-renowned scleroderma researcher James Seibold, ...
blue-eyes-1012
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Oct 4, 1999
7:27 pm
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