Hi Annette,

I too, have Systemic Scleroderma along with Raynaud's,
and then the minor list goes on. I am 49 and was
diagnosed three years ago. Although, the symptoms
plagued me for years prior to that, I just didn't have
a name.

You learned of this disease at a very young age and
have been dealing with this for a long time. It is
interesting to know that sixteen years ago, some
doctor... somewhere... was able to give you a correct
diagnosis.

I am just now learning that I need to start reaching
out to others for words of wisdom in dealing with this
illness. I am generally a person who deals with
things head on.. but this threw me for a major loop.
I didn't want this... therefore.. if I didn't talk
about it.. it would go away... silly me :)

It would provide great comfort to me to share thoughts
through email with you, and I too would like to be a
sounding board for you. This is a disease that few
people understand... and only those that have it truly
understand.

You can write to me at Synergy@...

I look forward to hearing from you!
God Be With You,
Cathy


--- annette372001 <annette372001@...> wrote:
> HELLO!! Im new here...Im a female Systemic
> Scleroderma patient with
> Raynaud's phenomenon and polymyositis . I was
> diagnosed
> when I was 21 yrs old....Im now 40 yrs old. Ive
> lived through a lot
> of ups and downs and have learnt much through
> determination of will
> and faith. If anyone wishes to email me for my
> thoughts or advise
> please feel free to do so and Ill help however I
> can.
>
>


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