Dear Margie
I am so sorry for the loss of your dear friend. I lost
my sister to SD 6 years ago, I understand completely
what you are going through it hurts as much today as
it did the day she died. But thaanks to this club and
the people i have met through here It makes life
bearable. Keep your head up ,as he would not want you
to be sad ,and remember he is in no more pain. I am
here for you if you need me. I would like very much to
be your new friend.
Renee
--- yvonne_johannes <yvonne_johannes@...> wrote:
> --- In sclerodermafriendsandfamily@y...,
> "margie332001"
> <margie332001@y...> wrote:
> > I first posted to this group on 24 August, telling
> of my friend who
> > was struggling through a very difficult painful
> time with
> > scleroderma.
> >
> > On 23 September my dear friend died, aged 40,
> after 24 years with
> > this cruel illness. I travelled interstate to his
> funeral. I miss
> > him terribly. My consolation is that he is not
> suffering any more.
> > The ache in my heart will stay. I don't even want
> to get over it.
> >
> > Thanks to Michelle from this group for her
> beautiful caring emails
> of
> > support. Some beautiful people have been
> afflicted with this
> > illness. I just hope and pray that something can
> be done so that
> > adequate funding is available for research to
> unlock the mystery,
> > find the cause (or causes) and one day a cure, so
> that people will
> > not have to suffer in the way my friend did.
> >
> > My love to all who are bravely struggling with
> scleroderma. You are
> > my heroes.
> > Margie. dear Margie,
> Thank you for your sad but
> wonderful letter.I have
> both Systemic Scleroderma and Seconday Pulmonary
> Hypertension plus I
> suffer from Basilor Migraines and that terrible
> Raynauld's.And 5
> weeks ago I was given the news by my dr that my
> broken leg was caused
> by none other than the Calcinosis problem I have
> with the
> C.R.E.S.T.Too little calcium is actually making it
> to my bones and
> now causing brittle bones.Some days I just want to
> stay in bed and
> forget about life in general,but I have too hectic
> of a lifestyle to
> do that.I am 45,been married 7 years to a wonderful
> man,and have lots
> of pets.I own 1
> ferret,1rat,1gerbil,2hamsters,3indoor cats,4dogs,14
> new kittens(from 3 different litters no less)and 9
> outdoor cats.You
> can contact me at critterkeeper2001@...
> love to talk,errrrr
> type and make new friends. Take
> care,and MGB,
> Yvonne
>
>


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