--- In sclerodermafriendsandfamily@y..., "margie332001"
<margie332001@y...> wrote:
> I first posted to this group on 24 August, telling of my friend who
> was struggling through a very difficult painful time with
> scleroderma.
>
> On 23 September my dear friend died, aged 40, after 24 years with
> this cruel illness. I travelled interstate to his funeral. I miss
> him terribly. My consolation is that he is not suffering any more.
> The ache in my heart will stay. I don't even want to get over it.
>
> Thanks to Michelle from this group for her beautiful caring emails
of
> support. Some beautiful people have been afflicted with this
> illness. I just hope and pray that something can be done so that
> adequate funding is available for research to unlock the mystery,
> find the cause (or causes) and one day a cure, so that people will
> not have to suffer in the way my friend did.
>
> My love to all who are bravely struggling with scleroderma. You are
> my heroes.
> Margie. dear Margie,
Thank you for your sad but wonderful letter.I have
both Systemic Scleroderma and Seconday Pulmonary Hypertension plus I
suffer from Basilor Migraines and that terrible Raynauld's.And 5
weeks ago I was given the news by my dr that my broken leg was caused
by none other than the Calcinosis problem I have with the
C.R.E.S.T.Too little calcium is actually making it to my bones and
now causing brittle bones.Some days I just want to stay in bed and
forget about life in general,but I have too hectic of a lifestyle to
do that.I am 45,been married 7 years to a wonderful man,and have lots
of pets.I own 1 ferret,1rat,1gerbil,2hamsters,3indoor cats,4dogs,14
new kittens(from 3 different litters no less)and 9 outdoor cats.You
can contact me at critterkeeper2001@... love to talk,errrrr
type and make new friends. Take care,and MGB,
Yvonne