--- In sclerodermafriendsandfamily@y..., "ldyoutlaw2001"
<krimson1_@h...> wrote:
> My mother was diagnoised with Scleroderma in the early 1970's.
Have
> been dealing with it for years and it has just gotten to the point
> that I am at a total loss... She has been given about 3-6 months
> left and I am just looking for someone to talk to.
> Thank you,
> Molly
Dear Molly,You can talk to me .I have had Systemic Scleroderma
with the C.R.E.S.T. syndrome,Raynaul'd Phenominum all for 10
years,and last October,2001 I was also dx with Secondary Pulmonary
Hypertension.The drs told me the PH was caused by the Scleroderma.I
now have the calcinosous beginning to cause me to have thinning bones.
(I am suffering with a broken leg right now)the drs tell me to have
all these problems is like winninig a lottery that nobody wants.
My addy is critterkeeper2001@...
Take care,
Yvonne Johannes