--- boatingmusicman <boatingmusicman@...>
wrote:
> My name is Dusty, I lived with a suffer of
> scleroderma for almost 11
> years. Her name is Kimera J. Goodman and she left
us
> all January 20th
> 2002. I have come here trying to cope with that
> because for some
> reason I still cannot accept it all. Also I am
mad
> as hell that more
> is not being done to save the suffers from this
> diease. All these
> damn pain meds to push away the symptoms but
never
> enough for the
> cure. I am posting this to let you know I care,
and
> if I can in
> anyway be your friend your support or give my
> insights into the
> disease and what we did to fight it please ask.
My E
> is open to all.
> We did a lot of trial and error stuff to try and
> make sure Kimera's
> life was at the least worth living.

Dusty
I am so sorry for your loss. I lost my sister to this
dreaded disease 6 years ago and still to this day have
not excepted it. The I wonder why every day it was her
and not me. I know that this si the way God wanted it
and I know she is with him. I agree with you anything
I can do to help make the public aware of SD i do. May
god Bless You and ease your pain if I can help please
let me know. Even if it is just to listen or sound off
too.

Your new friend

Renee
>
>


=====


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