HI!
My GP is awesome. I take information and experiences into the office
with me, and we work together. I'm one of two SD patients that he's
had. I think he's gotten more familiar with the disease since I
started visiting him. :) I'm healthier than I have been in a long
time. (Thank God) Being informed and active in your treatment is
essential.
Peace and hugs to all..
Hope

--- In sclerodermafriendsandfamily@y..., dynamicdebz <no_reply@y...>
wrote:
> Getting info from the internet has helped me enormously. I saw my
GP
> today because of severe itching & bruising on my legs. He only had
a
> vague idea about SD & because i told him of other peoples
experiences
> that I have learned about on the net, he was able to treat me
> appropriately. He was greatful for the information I gave him &
says
> he will find out more info for his self.
> Debby
>
>
> --- In sclerodermafriendsandfamily@y..., "mycoloredcoat"
> <mycoloredcoat@y...> wrote:
> > --- In sclerodermafriendsandfamily@y..., "mlss24" <lancey@b...>
> wrote:
> > > Hello everyone,
> > > Well i have finally had the appointment with the Rheumatoligist,
> > > I dont know what i expected,and he did seem to ask lots of
> question
> > > and he did check my joints,but......he seemed to tell me
> everything
> > i
> > > already knew when i asked if certain complaints i had were
linked,
> > > he just said "probably yes".As i say Im not sure what I
expected
> > but
> > > i came out of their with a perscription for my aches and pains
> but
> > > not much more. And it does look like i have sjogens as well as
> > crest.
> > > Im not sure weather to go back or not,it seems like such a lot
of
> > > money,to be told stuff I know.
> > > Thanks for listerning to me,
> > > I needed to get that out,
> > > warm hugs to you all,
> > > Michelle
> >
> > Hi Michelle
> > My Rheumatologist was the same way. He even went as far as to
tell
> me
> > NOT to read literature or go onto the Internet for information.
He
> > said that some of the things that I might find would alarm me
> > uneccessarily. Yeah, right. Not knowing is far worse, right?
> > I can't advise you whether or not to go back, but I will tell you
> > that you have a RIGHT to information, and not just a brush off.
> > Corner him, and tell him what YOU want. Meanwhile, you can do as
I
> > did, and surf the internet, and get as much reading material as
> > possible. I read a book on SD and I'll look up the exact name,
and
> > author, and post it a.s.a.p. Also, if you need to talk, email me.
> > Take Care,
> > Hope