Getting info from the internet has helped me enormously. I saw my GP
today because of severe itching & bruising on my legs. He only had a
vague idea about SD & because i told him of other peoples experiences
that I have learned about on the net, he was able to treat me
appropriately. He was greatful for the information I gave him & says
he will find out more info for his self.
Debby


--- In sclerodermafriendsandfamily@y..., "mycoloredcoat"
<mycoloredcoat@y...> wrote:
> --- In sclerodermafriendsandfamily@y..., "mlss24" <lancey@b...>
wrote:
> > Hello everyone,
> > Well i have finally had the appointment with the Rheumatoligist,
> > I dont know what i expected,and he did seem to ask lots of
question
> > and he did check my joints,but......he seemed to tell me
everything
> i
> > already knew when i asked if certain complaints i had were linked,
> > he just said "probably yes".As i say Im not sure what I expected
> but
> > i came out of their with a perscription for my aches and pains
but
> > not much more. And it does look like i have sjogens as well as
> crest.
> > Im not sure weather to go back or not,it seems like such a lot of
> > money,to be told stuff I know.
> > Thanks for listerning to me,
> > I needed to get that out,
> > warm hugs to you all,
> > Michelle
>
> Hi Michelle
> My Rheumatologist was the same way. He even went as far as to tell
me
> NOT to read literature or go onto the Internet for information. He
> said that some of the things that I might find would alarm me
> uneccessarily. Yeah, right. Not knowing is far worse, right?
> I can't advise you whether or not to go back, but I will tell you
> that you have a RIGHT to information, and not just a brush off.
> Corner him, and tell him what YOU want. Meanwhile, you can do as I
> did, and surf the internet, and get as much reading material as
> possible. I read a book on SD and I'll look up the exact name, and
> author, and post it a.s.a.p. Also, if you need to talk, email me.
> Take Care,
> Hope