hi sarah...
good to have you with us!
My mom has SD Raynaud's / CREST, has for 18 1/2 years.
you can read my personal story on my web page...
http://www.geocities.com/blue+eyes+1012
just click on the SD link.
I hope you all know that i'm no expert on the disease...and that i
created the club/group for us...family and friends....to have a place
to help each other! i try to post new things, sites that might help
etc...and i invite you all to do the same....we can beat this with all
of us working together!
have a great day...and will talk to you all soon...
(does anyone else have any times good for chatting? all i have gotten
are evenings....anyting else? i'll wrok on this......)
Diane
--- In sclerodermafriendsandfamily@y..., sarah_blackstaffe
<no_reply@y...> wrote:
> Hi
>
> My sister has just been diagnosed as having Scleroderma along with
> Raynauds disease. It has been a pretty scary time for all of us
> lately and it would be great to hear from others who have family with
> this.
>
> Thanks
> Sarah