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Scleroderma Friends and Family   Message List  
Reply | Forward Message #384 of 612 |
Re: My best friend just diagnosed with S

I wish your friend all the luck in the world. I
have been suffering along with my wife for five years
now. I think we hit the low point last year. She tried
all kinds of things, little if anything ever
helped.<br><br>She has a few things which helped control the skin
problems and has now started on a new and somewhat
controversial treatment. I am glad to report that she is
definately improving. Over the course of the last year her
energy, skin and weight have improved quite a bit. She is
no longer bed-bound and sleeping all the time as she
was last year. She has gained 14 pounds (which help
with everything including self-esteem).<br><br>She
still has a ways to go before she can do normal things
like drive a car again, but I think that we are months
away from things like that, whereas before I never
thought to see her out of the bed not crying. Now she is
a bundle of energy painting and drawing up a storm.
Sometimes when I come home at night she is too busy to say
hi. I love it!<br><br>Hooray for her spirit and I
hope that I can help anyone else with what has helped
Jacqueline.<br><br>If anyone would like to know about the things she
has tried and what has worked, please do not hesitate
to contact me:<br><br>WoolieGeek@...




Thu Dec 6, 2001 6:09 am

wooliegeek
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Message #384 of 612 |
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Hi Sharon,<br><br>I am not a scleroderma sufferer, but my hobby is medicine. There is some new research that seems<br>to be slow to spread about the treatment...
ronfrombell
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Dec 1, 2001
6:54 pm

I wish your friend all the luck in the world. I have been suffering along with my wife for five years now. I think we hit the low point last year. She tried ...
wooliegeek
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Dec 6, 2001
6:09 am

Hi everyone<br>I am new to this but I have just recently lost my husband of 31 years. He passed away on Nov 8/01.<br>He had sclerodurma and Lupus. He had ...
babieboots
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Dec 10, 2001
10:50 am

So sorry for your loss. Hopefully he was not suffering at the end....
miller7982001
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Dec 12, 2001
3:52 pm

Is anyone using low-dose antibiotics for scleroderma? There are a few articles out there on this, but our docs do not seem to support it....
miller7982001
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Dec 12, 2001
4:04 pm

That's not true. I'm in Columbus and I'm on minocycline. It's not that docs don't support it, they are not allowing others (near Columbus) to claim it as a...
alby40
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Dec 12, 2001
4:19 pm

I havent writtne in a while but i have been reading all the posts. My friend was just released form the hospital yesterday. The SD has attcked her kidneys. She...
kgmb8490
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Dec 16, 2001
10:43 pm

Karin - This is an article that summarizes a recent study about scleroderma renal crisis:<br><a...
alby40
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Dec 16, 2001
11:07 pm

Thanks for the info! It is greatly appreciated!<br>Karin...
kgmb8490
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Dec 17, 2001
6:32 pm

Best wishes to all for a great new year. I hope everyone is doing well. Ihaven't posted in a while, but thought I would stop by to say hi and wish you all the ...
cattm42
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Dec 29, 2001
12:39 am

Hi all.<br><br>My mum is a sufferer of this aweful disease, I was wondering, does anyone know whether smoking although the normal adverse affects, does it...
kentishlad_1999
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Feb 3, 2002
6:15 pm

Obviously it depends on the medication - ask your pharmacist. If your mum has Raynauds's, smoking is certainly contributing to that, as nicotine causes blood...
alby40
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Feb 4, 2002
3:18 am

COLUMBUS, Ohio - People who get icy-cold fingers and toes may have more than just an aversion to winter weather. <br><br>Researchers have determined the cause...
alby40
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Feb 5, 2002
2:31 am

Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Founded in 1995, we produce Today's...
alby40
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Feb 11, 2002
3:03 pm

My wife has diffuse disease, with mild pulm hypertension. Now they are saying she may have a restrictive cardiomyopathy, and they want to repeat her heart cath...
miller798
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Feb 14, 2002
2:14 pm

Sorry I can't help on this one as I am in the UK. Hope you manage to sort things out - please keep us posted.<br><br>Mike...
kentishlad_1999
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Feb 17, 2002
9:54 am

I recently have lost two friends from scleroderma. One was my friend's 72-year old father, who died as a result of pulmonary fibrosis this past Dec. 7th. My...
riverdalerebels1981
riverdalereb...
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Feb 26, 2002
10:04 pm

I'm so sorry to hear about your friends. Here's a couple of links about TTP:<br><a href=http://www.emedicine.com/neuro/topic499.htm...
alby40
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Feb 26, 2002
10:22 pm
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