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Reply | Forward Message #383 of 612 |
Re: Scleroderma husband

Hi Sharon,<br><br>I am not a scleroderma
sufferer, but my hobby is medicine. There is some new
research that seems<br>to be slow to spread about the
treatment of this condition. (long term
antibiotics)<br><br>I will attach the article to this post and hope
that it passes the scrutiny of the
moderator.<br><br>Feel free to email me at
ronh8semail@...<br>if you wish to ask any questions.<br><br>Bye for
now... Ron<br><br>
---------------------------------------------<br>G163 6/3/99 <br><br>
SCLERODERMA<br><br> Gabe Mirkin,
M.D.<br><br>On May 5, 1998, Dr. David Trentham of Harvard
Medical School reported to the International Society for
Rheumatic Studies in<br>Boston, Massachusetts that an
inexpensive antibiotic called minocycline helps to alleviate
the destruction caused by scleroderma,<br>a
progressive destructive disease that until now had no
effective treatment and is often fatal. <br><br>Scleroderma
is a disease characterized by skin that becomes so
stiff that it looks and feels like leather, fingers
that turn blue and<br>hurt on exposure to cold, a
terrible arthritis that freezes and deforms joints,
muscles, tendons and ligaments, an esophagus that is<br>so
scarred and deformed that swallowing becomes difficult
and eventually impossible, heart, lung and kidney
scarring that causes<br>heart failure, shortness of breath
and kidney failure, low thyroid function, dry vagina
and eyes, impotence, calcium deposits under<br>the
skin and large blood vessels to become visible on the
skin. Although no bacteria has been isolated from
people with this<br>disease, it could be an infection
because many tests for an overactive immunity are
positive. The usual treatment is with drugs,<br>such as
penicillamine, that are not very effective. Many doctors are
skeptical about Dr. Trentham's treatment, but he is a
highly<br>respected researcher with impeccable credentials, the
treatment is far safer than anything else, and no other
treatment has been<br>shows to help treat scleroderma.
<br><br>I prescribe minocycline 100 mg twice a day (some
doctors use higher doses). I tell my patients to avoid
sunlight as it increases<br>their chances of being
sunburned, take the pills with plenty of water and eat
afterwards to push the pills down into the stomach
as<br>they can cause an irritation of the esophagus, and to
stop the mediation and call me if they suffer diarrhea
or other possible side<br>effects. 50% of people
with localized scleroderma or morphea have blood
evidence of infection with Lyme disease. Many can
be<br>cured with a long course of doxycycline, azithromycin
or clarithromycin. <br><br>Andrew Franks Jr. of New
York University, Department of Dermatology<br><br>
Health Reports from The Dr. Gabe Mirkin Show and
DrMirkin.com <br><br> Transcripts of segments of The Dr. Gabe
Mirkin Show are provided as a service to listeners at no
charge. Dr. Mirkin's opinions<br> and the references
cited are for information only, and are not intended to
diagnose or prescribe. For your specific diagnosis and<br>
treatment, consult your doctor or health care provider.




Sat Dec 1, 2001 6:54 pm

ronfrombell
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Forward
Message #383 of 612 |
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Thank you for your postings. It is helpful to just know other people are out there dealing with this dreadful condition....
miller7982001
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Nov 16, 2001
1:45 pm

Hi Sharon,<br><br>I am not a scleroderma sufferer, but my hobby is medicine. There is some new research that seems<br>to be slow to spread about the treatment...
ronfrombell
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Dec 1, 2001
6:54 pm

I wish your friend all the luck in the world. I have been suffering along with my wife for five years now. I think we hit the low point last year. She tried ...
wooliegeek
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Dec 6, 2001
6:09 am

Hi everyone<br>I am new to this but I have just recently lost my husband of 31 years. He passed away on Nov 8/01.<br>He had sclerodurma and Lupus. He had ...
babieboots
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Dec 10, 2001
10:50 am

So sorry for your loss. Hopefully he was not suffering at the end....
miller7982001
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Dec 12, 2001
3:52 pm

Is anyone using low-dose antibiotics for scleroderma? There are a few articles out there on this, but our docs do not seem to support it....
miller7982001
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Dec 12, 2001
4:04 pm

That's not true. I'm in Columbus and I'm on minocycline. It's not that docs don't support it, they are not allowing others (near Columbus) to claim it as a...
alby40
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Dec 12, 2001
4:19 pm

I havent writtne in a while but i have been reading all the posts. My friend was just released form the hospital yesterday. The SD has attcked her kidneys. She...
kgmb8490
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Dec 16, 2001
10:43 pm

Karin - This is an article that summarizes a recent study about scleroderma renal crisis:<br><a...
alby40
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Dec 16, 2001
11:07 pm

Thanks for the info! It is greatly appreciated!<br>Karin...
kgmb8490
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Dec 17, 2001
6:32 pm

Best wishes to all for a great new year. I hope everyone is doing well. Ihaven't posted in a while, but thought I would stop by to say hi and wish you all the ...
cattm42
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Dec 29, 2001
12:39 am

Hi all.<br><br>My mum is a sufferer of this aweful disease, I was wondering, does anyone know whether smoking although the normal adverse affects, does it...
kentishlad_1999
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Feb 3, 2002
6:15 pm

Obviously it depends on the medication - ask your pharmacist. If your mum has Raynauds's, smoking is certainly contributing to that, as nicotine causes blood...
alby40
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Feb 4, 2002
3:18 am

COLUMBUS, Ohio - People who get icy-cold fingers and toes may have more than just an aversion to winter weather. <br><br>Researchers have determined the cause...
alby40
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Feb 5, 2002
2:31 am

Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Founded in 1995, we produce Today's...
alby40
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Feb 11, 2002
3:03 pm

My wife has diffuse disease, with mild pulm hypertension. Now they are saying she may have a restrictive cardiomyopathy, and they want to repeat her heart cath...
miller798
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Feb 14, 2002
2:14 pm

Sorry I can't help on this one as I am in the UK. Hope you manage to sort things out - please keep us posted.<br><br>Mike...
kentishlad_1999
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Feb 17, 2002
9:54 am

I recently have lost two friends from scleroderma. One was my friend's 72-year old father, who died as a result of pulmonary fibrosis this past Dec. 7th. My...
riverdalerebels1981
riverdalereb...
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Feb 26, 2002
10:04 pm

I'm so sorry to hear about your friends. Here's a couple of links about TTP:<br><a href=http://www.emedicine.com/neuro/topic499.htm...
alby40
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Feb 26, 2002
10:22 pm
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