You mentioned in an earlier message that you had
MCTD. How did your doctors come to that conclusion? We
are wondering if my wife may have this rather than
scleroderma, as her scleroderma antibody was negative.
<br>Thanks for your encouraging words.
Hi this sounds so much like me. I have been dx. for five years now and still have a hard time when I'm with other scleroderma patients. She has to remember...
You mentioned in an earlier message that you had MCTD. How did your doctors come to that conclusion? We are wondering if my wife may have this rather than ...
Miller, I'm in Hilliard. Maybe your wife would like to talk to me? I don't have severe facial disease and I understand her problem. The first meeting I walked...
Actually I have been to four Drs. now and that is what they all came up with. I had a hard time believing I was sick. I was only 25 how could I be so sick was...
My name is Sharon. I have Scleroderma. I have the same fears. I have not been to a support meeting yet because of the same fear. I am so emotional about my ...
Hi Sharon,<br><br>I am not a scleroderma sufferer, but my hobby is medicine. There is some new research that seems<br>to be slow to spread about the treatment...
I wish your friend all the luck in the world. I have been suffering along with my wife for five years now. I think we hit the low point last year. She tried ...
Hi everyone<br>I am new to this but I have just recently lost my husband of 31 years. He passed away on Nov 8/01.<br>He had sclerodurma and Lupus. He had ...
That's not true. I'm in Columbus and I'm on minocycline. It's not that docs don't support it, they are not allowing others (near Columbus) to claim it as a...
I havent writtne in a while but i have been reading all the posts. My friend was just released form the hospital yesterday. The SD has attcked her kidneys. She...
Best wishes to all for a great new year. I hope everyone is doing well. Ihaven't posted in a while, but thought I would stop by to say hi and wish you all the ...
Hi all.<br><br>My mum is a sufferer of this aweful disease, I was wondering, does anyone know whether smoking although the normal adverse affects, does it...
Obviously it depends on the medication - ask your pharmacist. If your mum has Raynauds's, smoking is certainly contributing to that, as nicotine causes blood...
COLUMBUS, Ohio - People who get icy-cold fingers and toes may have more than just an aversion to winter weather. <br><br>Researchers have determined the cause...
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My wife has diffuse disease, with mild pulm hypertension. Now they are saying she may have a restrictive cardiomyopathy, and they want to repeat her heart cath...
I recently have lost two friends from scleroderma. One was my friend's 72-year old father, who died as a result of pulmonary fibrosis this past Dec. 7th. My...
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