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Reply | Forward Message #35 of 612 |
A special chat at Scleroderma Support Cl

SPECIAL CHAT FOR SCLERODERMA FOUNDATION
MEMBERS:<br><br>Dear Scleroderma Foundation member:<br><br>As you may
have read in the latest issue of "Newsline," the
Scleroderma <br>Foundation is now calling for nominees for
its new Board of Directors. Every <br>single current
board member's term will expire at the end of this
year.<br><br>This creates an unprecedented opportunity for members
to create the <br>Foundation they want to see -- a
strong, positive and proactive group who <br>will find
the fastest track to a cure. Let's use the
opportunity of the new <br>millennium to build and grow!
<br><br>Scleroderma researchers tell us they believe this disease
will be cured. <br>They need our help. Every one of us
reading this message can play a crucial <br>role. Let's
create a strong board!<br><br>If you have expertise to
contribute, and have the stamina, commitment and <br>energy
to work hard, run for the board. If you don't
believe you have what <br>it takes to be a board member,
look around you for someone who does -- a <br>spouse,
a business associate, friends or relatives who care
about you and <br>about making a difference in the
lives of hundreds of thousands of people. <br><br>Board
members establish policies and programs, direct staff,
determine the <br>Foundation's vision and priorities. You,
as an SF member, can influence all <br>of this by
your participation and input in this upcoming
election. Please <br>make your voices heard. <br><br>There
will be a special chat 8 p.m. EDT (5 p.m. Pacific)
next Thursday, May 13, at your club,
<a href=http://clubs.yahoo.com/clubs/sclerodermasupport.
target=new>http://clubs.yahoo.com/clubs/sclerodermasupport.</a> You must be a
club member to use the chat room.
Contact ayaussy@... for more
info.<br><br>Thanks! We CAN make a big difference in the lives of
those living with <br>scleroderma.<br><br>Ronni
(SDAware)






Fri May 7, 1999 8:19 pm

alby40
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Message #35 of 612 |
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ave your friends or family members had problems getting disability, or any anything of that nature...my mom has been basicly laughed at when she goes to the ...
blue-eyes-1012
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May 3, 1999
6:45 pm

SPECIAL CHAT FOR SCLERODERMA FOUNDATION MEMBERS:<br><br>Dear Scleroderma Foundation member:<br><br>As you may have read in the latest issue of "Newsline," the ...
alby40
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May 7, 1999
8:19 pm

lue eyes, sounds like a good time for me, Monday is a off day from doing things still resting up from the weekend-and Wed evenings might be not so good, a lot...
doris58_98
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May 8, 1999
5:35 pm

ust wanted everyone to know i didn't forget about this stuff...but have been out of town, and getting ready to go out of town again...busy month may ...
blue-eyes-1012
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May 20, 1999
1:59 pm

'm just wondering who's making plans to attend the SF conference in San Diego in August?...
alby40
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May 26, 1999
8:36 pm

ello,<br>A close friend of mine has a sister that is living with scleroderma, and is seeking support and info. She doesn't have a computer, so I'm letting her...
rodadair
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May 28, 1999
9:00 pm

ust got back from a long vacation...want to let everyone know that i'm going to be doing alot of work on promoting the club, as well as getting chat times...
blue-eyes-1012
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Jun 3, 1999
10:05 pm

ope you had a great time. Let us current members know how we can help you!...
alby40
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Jun 4, 1999
4:13 pm

WILL let you guys know... ... does...there is a banner and button in the photo section...add them to the pages, and add the link!<br><br>if anyone has any...
blue-eyes-1012
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Jun 4, 1999
11:37 pm

<a href=http://dailynews.yahoo.com/headlines/hl/story.html?s=v/nm/19990607/hl/kids13_1.html...
alby40
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Jun 8, 1999
2:20 pm

A lot of information for Caregivers<br><a href=http://www.intelihealth.com/IH/ihtlh?t=9030&p=~br,IPNl~st.90301~r,EAlPN001l~b,7...
doris58_98
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Jun 9, 1999
11:55 am

thanks for the info!!...
blue-eyes-1012
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Jun 9, 1999
5:02 pm

newsletters for me and/or my mom to stay curent...where can i find them???...
blue-eyes-1012
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Jun 9, 1999
5:23 pm

Are you looking for a scleroderma newsletter? If you're not already a member of the Scleroderma Foundation, join! Their excellent letter is "The Newsline."...
alby40
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Jun 10, 1999
4:41 pm

thanks i'll try that! Is there anything that can be snail mailed to my mom??...
blue-eyes-1012
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Jun 16, 1999
11:10 pm

See pics of Scleroderma Foundation members and friends who gained face-time for SD awareness this morning on the Today show at <a...
alby40
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Jun 17, 1999
11:38 pm

just wanted to let you all know that i have been having problems with the phone line, that's why i haven't been in lately...hope to have it fixed soon, so we...
blue-eyes-1012
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Jun 23, 1999
1:50 pm

Hi, my name is Christine. I'm the mother of two wonderful daughters. My youngest daughter will be heading off to school in Florida this fall(yikes! It's so far...
click711
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Jun 27, 1999
4:26 pm

My mom passed away on June 19 after an courageous battle with CREST Syndrome. She was diagnosed in 1990, and did quite well for a few years. Two years ago she ...
jgilnish
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Jul 2, 1999
1:18 am

First let me express my sympathy to you and your family jgilinsh! and we hope that you will continue to lend support here, I can tell you have so much to ...
blue-eyes-1012
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Jul 3, 1999
8:30 pm

have you checked out the links section of the club...maybe there is some information that you will find useful!...
blue-eyes-1012
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Jul 3, 1999
8:31 pm

Hi Christine,<br>I just found this site this morning & saw your message. I think I can understand what you & your daughter are going through. My daughter, now...
flofarkle
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Jul 15, 1999
7:02 pm

Hi again<br>I'm new to this program, and not that great on the computer period. Some how I sent the previous msg. befor signing it. Also I probably will not be...
flofarkle
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Jul 15, 1999
7:15 pm

Hi friends and family! I'm always on the lookout for pertinent articles in the "News" area at the Scleroderma Support club and thought you'd be interested in ...
alby40
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Jul 17, 1999
11:40 am

<a href=http://clubs.yahoo.com/clubs/sclerodermasupport target=new>http://clubs.yahoo.com/clubs/sclerodermasupport</a>...
alby40
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Jul 28, 1999
4:15 pm

Please post your chat schedule again? Thanks!!...
alby40
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Jul 28, 1999
4:18 pm

Is there a regular time for friends and family chat? I do not see it on the calender and I would like to let some of my friends and family, whom I have invited...
Campy54
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Jul 30, 1999
1:32 am

mondays at 2 pm EST and Wed. at 8pm Est...
blue-eyes-1012
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Jul 30, 1999
12:09 pm

just wanted to let you guys know...i have been mia for a bit, cause our phone line has been giving us problems, and hasn't gotten fixed yet...sometimes i can't...
blue-eyes-1012
Offline Send Email
Jul 30, 1999
12:10 pm

My fiance's mother recently passed away because of complications from Scleroderma. The circulation in her feet was so bad that they had to amputate both of her...
aaronunnasch
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Aug 18, 1999
2:58 am
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