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Scleroderma Friends and Family   Message List  
Reply | Forward Message #308 of 612 |
Re: Worried about my friend

Hi Mike,<br><br>Sorry to hear about your mom's
disease. I also have Scleroderma it is diffusive, and it
damaged my lungs. Right now I'm on the waiting list for a
transplant.<br><br>Don't say that she will not recover from this disease,
because I thought the samething about me and, my Doctor
recommended some medicine that had helped me so much can't
even imagine how much. I feel better now and my
thightnes had dissapear. What I suggest you to do is to
take her to a good Rheumatologist, experienced on
Scleroderma and get some help. <br><br>Cheer up, and don't
give up that easily.<br>Love you<br>Yolima
Sun Jul 15, 2001 4:42 pm

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yobeca
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Forward 		Message #308 of 612 |
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I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...
alby40
Offline Send Email 		Jul 15, 2001
12:30 am

Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...
yobeca
Offline Send Email 		Jul 15, 2001
4:42 pm

does any one know what a barium swallow is for?<br>I had a bunch of tests done today and that was one of them.also it took 2.5 hours after swallowing the ...
sherry_penman
Offline Send Email 		Jul 20, 2001
5:31 am

My Mother has had a couple of Barium meals which is what they are called here in UK. The time may vary as the chalky stuff needs to get through your system for...
kentishlad_1999
Offline Send Email 		Jul 20, 2001
5:34 am

This is a pretty nice explanation of what a barium swallow test is for as well as how the test is done:<br><a...
alby40
Offline Send Email 		Jul 20, 2001
2:44 pm

Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...
kentishlad_1999
Offline Send Email 		Jul 21, 2001
5:59 pm

I was diagnosed 7 months ago with discoid lupus-then they call me and say it might not be lupus and are now looking for scleroderma...ok...now they send me my...
sherry_penman
Offline Send Email 		Jul 25, 2001
4:25 am

I would suggest maybe writing the words down, They are quite a few members here and I am sure some will be able to help or at least its worth a go!...
kentishlad_1999
Offline Send Email 		Jul 25, 2001
4:50 am

epidermis,papillary dermis,<br>they say the epidermis shows papakeratosis with focal vacuolization.<br>sarcoid<br>granuloma annulare<br>also--my mch and mchc...
sherry_penman
Offline Send Email 		Jul 25, 2001
3:54 pm

Here's a site that explains the mhc and mchc.<br><a href=http://www.healthcentral.com/mhc/top/003648.cfm...
alby40
Offline Send Email 		Jul 25, 2001
5:29 pm

GOOD MORNING everyone!!!!!<br>hope today finds everyone well and feeling fine.have a good day.<br>HAPPY BIRTHDAY JENNIFER!!!!!<br> sherry...
sherry_penman
Offline Send Email 		Jul 27, 2001
3:11 pm

Hello everybody-Does anyone know if you can get lupus or sclerorderma from a blood transfusion?<br>Thanks for any help....sherry p...
sherry_penman
Offline Send Email 		Jul 30, 2001
4:45 am

I am pretty sure that you can't but I am not 100% sure, I am sure this was one of the questions my Mother asked when the SD was finally diagnosed. But maybe ...
kentishlad_1999
Offline Send Email 		Jul 30, 2001
5:01 am

Scleroderma is NOT contagious. There's no "scleroderma germ." It's the result of your own body's immune system overreacting to known or unknown triggers (known...
alby40
Offline Send Email 		Jul 30, 2001
4:02 pm

thanks for the imformation.You have been very helpful!!<br>sherry p...
sherry_penman
Offline Send Email 		Jul 31, 2001
2:39 am

Hi. I just foudn this club and was wondering if anybody out there ever lost a parent to scleroderma. I did about 12 years ago. It's still hard on a day to day...
cheri_dorwart
Offline Send Email 		Jul 31, 2001
3:00 am

Hi Cheri<br><br>Well My Mum was diagnosed with SD about 4 years, it is really taken its toll and the affects it has on my Mum is on the increase. She is also ...
kentishlad_1999
Offline Send Email 		Jul 31, 2001
4:51 am

Dear Cheri,<br><br>I lost my mother to this horrible disease on January 27th of this year. My mother was a hard workingwomen her entire life and had to in ...
anet_90065
Offline Send Email 		Aug 2, 2001
6:37 am

Hi Anet<br><br>Firstly I am so very sorry to hear of you loss, this disease is horrible.<br><br>My Mum was diagnosed with SD about 4 years ago, this was after...
kentishlad_1999
Offline Send Email 		Aug 2, 2001
7:04 am

sorry i have been mia...things have been crazy on this end! busy, busy, busy! Glad to see so many of you posting!<br><br>Hope everyone is doing well...i keep...
blue-eyes-1012
Offline Send Email 		Aug 2, 2001
3:39 pm

hi...how is everyone surviving the heat wave...looks like it's almost over here in ny state...
blue-eyes-1012
Offline Send Email 		Aug 10, 2001
4:27 pm

You are right, I also live in NY and I'm so glad it is over. I couldn't resist the heat and had to stayed home under AC all day. I hope the Electricity bill...
yobeca
Offline Send Email 		Aug 12, 2001
11:02 pm

Hi Chereller,<br><br>I'm not a Doctor or stocks holder of the company, only a scleroderma patient. I'm taking this medication for over eight months and it had ...
yobeca
Offline Send Email 		Aug 12, 2001
11:41 pm

My sister was diagnosed w/raynauds syndrom about 10 years ago,scleroderma later.She's never been one to talk when things get tough in her life(which is really...
oz4glinda
Offline Send Email 		Aug 13, 2001
1:42 am

Hi Lynne<br><br>I really do sympathise with you, my mother was diagnosed about 3 years with sceleraderma, this after many visits to the hospital to find out...
kentishlad_1999
Offline Send Email 		Aug 13, 2001
6:49 pm

My mother took a dose of the above back in march of this year I personally feel that it did not do anything noticeably better and in fact a few weeks after my...
kentishlad_1999
Offline Send Email 		Aug 13, 2001
6:57 pm

It was probably used to dilate blood vessels - is your mom having problems with finger ulcers or other affects from Raynaud's? Iloprost was shown to work well ...
alby40
Offline Send Email 		Aug 13, 2001
11:01 pm

I found a cool decal on this site. I thought I would share this with my buddy's!<br> Love,Tzeme2000...
tzeme2000
Offline Send Email 		Aug 14, 2001
3:54 pm

Dear Lynn,<br>My husband was diagnosed with scleroderma almost 2 yrs ago. 4 the 15 yrs we have been married he has been the picture of health. When he got sick...
dance_2168
Offline Send Email 		Aug 15, 2001
4:14 am

hi guys....just let me know if there is ever a color you don't like, that makes it hard to see or whatever ok....was just playing around with some ...
blue-eyes-1012
Offline Send Email 		Aug 16, 2001
1:53 am
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