I'm not familiar with what in scleroderma would
cause your friend's back to be red except for small,
damaged blood vessels called telangectasia. We mostly get
them on the face, palms, and inside the mouth. A lot
of them together could look like a red area, but
they look more like flat pimples.<br><br>If your
friend has had arthritis since childhood, she probably
has the inflammatory kind, rheumatoid arthritis. When
scleroderma and RA occur together, it's known as Mixed
Connective Tissue Disease. While SD can cause hardening of
skin and internal organs (at its most extreme) the
joint pains it causes are not usually damaging.
Unfortunately, RA does damage the joints, so she's really got a
tough combination.<br><br>You're wonderful to be so
concerned and wanting to be so supportive. Just know that
she'll have good days and crummy days, and it makes it
hard to plan things. Be flexible and upbeat, and help
her to stay upbeat, too. It's very easy to get
depressed about how the diseases affect you and change your
life, and from there it's really easy to give up and
become isolated.<br><br>Also help and encourage her to
keep up her doctor visits. It's important to fight the
inflammation that threatens her joints from RA and can lead to
fibrosis formation in SD. I know at 20-something, being on
daily meds was the last thing on my mind, but she needs
to be more vigilant than most
20-somethings.<br><br>My aunt has had SD since her 20's and, though it's
been an up and down trip, she's still very active 40
years later. She has raised her own family and is now
helping with her grandchildren.
I thought I should reply to your note, my Mother suffers from SD and was diagnosed about 4 years ago. She has the type which has affected her stomach and skin....
I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...
Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...
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Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...
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Hi. I just foudn this club and was wondering if anybody out there ever lost a parent to scleroderma. I did about 12 years ago. It's still hard on a day to day...
Hi Cheri<br><br>Well My Mum was diagnosed with SD about 4 years, it is really taken its toll and the affects it has on my Mum is on the increase. She is also ...
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sorry i have been mia...things have been crazy on this end! busy, busy, busy! Glad to see so many of you posting!<br><br>Hope everyone is doing well...i keep...
You are right, I also live in NY and I'm so glad it is over. I couldn't resist the heat and had to stayed home under AC all day. I hope the Electricity bill...
Hi Chereller,<br><br>I'm not a Doctor or stocks holder of the company, only a scleroderma patient. I'm taking this medication for over eight months and it had ...
My sister was diagnosed w/raynauds syndrom about 10 years ago,scleroderma later.She's never been one to talk when things get tough in her life(which is really...
Hi Lynne<br><br>I really do sympathise with you, my mother was diagnosed about 3 years with sceleraderma, this after many visits to the hospital to find out...
My mother took a dose of the above back in march of this year I personally feel that it did not do anything noticeably better and in fact a few weeks after my...
It was probably used to dilate blood vessels - is your mom having problems with finger ulcers or other affects from Raynaud's? Iloprost was shown to work well ...
Dear Lynn,<br>My husband was diagnosed with scleroderma almost 2 yrs ago. 4 the 15 yrs we have been married he has been the picture of health. When he got sick...