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Reply | Forward Message #306 of 612 |
Re: Worried about my friend

I thought I should reply to your note, my Mother
suffers from SD and was diagnosed about 4 years ago. She
has the type which has affected her stomach and skin.
She is constantly either vomitting or its coming out
the other end, always tired.<br><br>I wish I could
give you some hope but I have come to a realization
that my Mum will not get better from this dreadful
disease. The best I can do to help is to be there for when
she needs to be, which is not as easy as it
sounds.<br><br>If you wanna keep in contact which would be good,
feel free to email me at
kentishlad_1999@...<br><br>Mike




Sat Jul 14, 2001 9:37 pm

kentishlad_1999
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Message #306 of 612 |
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Hi,my best friend of 14 years was diagnosed about 2 years ago with scleroderma. She has had arthitritis since she was about 6. I had and still really have no...
sams_96
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Jul 14, 2001
12:11 am

I thought I should reply to your note, my Mother suffers from SD and was diagnosed about 4 years ago. She has the type which has affected her stomach and skin....
kentishlad_1999
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Jul 14, 2001
9:37 pm

I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...
alby40
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Jul 15, 2001
12:30 am

Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...
yobeca
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Jul 15, 2001
4:42 pm

does any one know what a barium swallow is for?<br>I had a bunch of tests done today and that was one of them.also it took 2.5 hours after swallowing the ...
sherry_penman
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Jul 20, 2001
5:31 am

My Mother has had a couple of Barium meals which is what they are called here in UK. The time may vary as the chalky stuff needs to get through your system for...
kentishlad_1999
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Jul 20, 2001
5:34 am

This is a pretty nice explanation of what a barium swallow test is for as well as how the test is done:<br><a...
alby40
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Jul 20, 2001
2:44 pm

Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...
kentishlad_1999
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Jul 21, 2001
5:59 pm

I was diagnosed 7 months ago with discoid lupus-then they call me and say it might not be lupus and are now looking for scleroderma...ok...now they send me my...
sherry_penman
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Jul 25, 2001
4:25 am

I would suggest maybe writing the words down, They are quite a few members here and I am sure some will be able to help or at least its worth a go!...
kentishlad_1999
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Jul 25, 2001
4:50 am

epidermis,papillary dermis,<br>they say the epidermis shows papakeratosis with focal vacuolization.<br>sarcoid<br>granuloma annulare<br>also--my mch and mchc...
sherry_penman
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Jul 25, 2001
3:54 pm

Here's a site that explains the mhc and mchc.<br><a href=http://www.healthcentral.com/mhc/top/003648.cfm...
alby40
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Jul 25, 2001
5:29 pm

GOOD MORNING everyone!!!!!<br>hope today finds everyone well and feeling fine.have a good day.<br>HAPPY BIRTHDAY JENNIFER!!!!!<br> sherry...
sherry_penman
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Jul 27, 2001
3:11 pm

Hello everybody-Does anyone know if you can get lupus or sclerorderma from a blood transfusion?<br>Thanks for any help....sherry p...
sherry_penman
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Jul 30, 2001
4:45 am

I am pretty sure that you can't but I am not 100% sure, I am sure this was one of the questions my Mother asked when the SD was finally diagnosed. But maybe ...
kentishlad_1999
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Jul 30, 2001
5:01 am

Scleroderma is NOT contagious. There's no "scleroderma germ." It's the result of your own body's immune system overreacting to known or unknown triggers (known...
alby40
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Jul 30, 2001
4:02 pm

thanks for the imformation.You have been very helpful!!<br>sherry p...
sherry_penman
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Jul 31, 2001
2:39 am

Hi. I just foudn this club and was wondering if anybody out there ever lost a parent to scleroderma. I did about 12 years ago. It's still hard on a day to day...
cheri_dorwart
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Jul 31, 2001
3:00 am

Hi Cheri<br><br>Well My Mum was diagnosed with SD about 4 years, it is really taken its toll and the affects it has on my Mum is on the increase. She is also ...
kentishlad_1999
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Jul 31, 2001
4:51 am

Dear Cheri,<br><br>I lost my mother to this horrible disease on January 27th of this year. My mother was a hard workingwomen her entire life and had to in ...
anet_90065
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Aug 2, 2001
6:37 am

Hi Anet<br><br>Firstly I am so very sorry to hear of you loss, this disease is horrible.<br><br>My Mum was diagnosed with SD about 4 years ago, this was after...
kentishlad_1999
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Aug 2, 2001
7:04 am

sorry i have been mia...things have been crazy on this end! busy, busy, busy! Glad to see so many of you posting!<br><br>Hope everyone is doing well...i keep...
blue-eyes-1012
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Aug 2, 2001
3:39 pm

hi...how is everyone surviving the heat wave...looks like it's almost over here in ny state...
blue-eyes-1012
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Aug 10, 2001
4:27 pm

You are right, I also live in NY and I'm so glad it is over. I couldn't resist the heat and had to stayed home under AC all day. I hope the Electricity bill...
yobeca
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Aug 12, 2001
11:02 pm

Hi Chereller,<br><br>I'm not a Doctor or stocks holder of the company, only a scleroderma patient. I'm taking this medication for over eight months and it had ...
yobeca
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Aug 12, 2001
11:41 pm

My sister was diagnosed w/raynauds syndrom about 10 years ago,scleroderma later.She's never been one to talk when things get tough in her life(which is really...
oz4glinda
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Aug 13, 2001
1:42 am

Hi Lynne<br><br>I really do sympathise with you, my mother was diagnosed about 3 years with sceleraderma, this after many visits to the hospital to find out...
kentishlad_1999
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Aug 13, 2001
6:49 pm

My mother took a dose of the above back in march of this year I personally feel that it did not do anything noticeably better and in fact a few weeks after my...
kentishlad_1999
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Aug 13, 2001
6:57 pm

It was probably used to dilate blood vessels - is your mom having problems with finger ulcers or other affects from Raynaud's? Iloprost was shown to work well ...
alby40
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Aug 13, 2001
11:01 pm

I found a cool decal on this site. I thought I would share this with my buddy's!<br> Love,Tzeme2000...
tzeme2000
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Aug 14, 2001
3:54 pm
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