Hi,my best friend of 14 years was diagnosed about
2 years ago with scleroderma. She has had
arthitritis since she was about 6. I had and still really
have no idea what SD is.She tries not to worry me with
it but I saw something that just disturbed me. We
are young, both of us 24,we were going out the other
night and she had a shirt on that revealed her back and
I noticed it was all red so I asked her was it
sunburn and she nonchalantly told me it was a result of
the SD. She told me it affected the blood vessels
that were on her skin. I thought the disease made
arteries and organs harden,can someone tell me if that is
what happened to her blood vessels. Also everything I
am reading seems to only have a grim outcome. I love
my best friend dearly and would truly like to see us
grow old and have families. How long can you live with
SD? I know these are a lot of questions it's just
that I am concerned and want to know what can I do to
help and be supportive of her. thanks for any
response.<br>sams_96
Hi,my best friend of 14 years was diagnosed about 2 years ago with scleroderma. She has had arthitritis since she was about 6. I had and still really have no...
I thought I should reply to your note, my Mother suffers from SD and was diagnosed about 4 years ago. She has the type which has affected her stomach and skin....
I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...
Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...
does any one know what a barium swallow is for?<br>I had a bunch of tests done today and that was one of them.also it took 2.5 hours after swallowing the ...
My Mother has had a couple of Barium meals which is what they are called here in UK. The time may vary as the chalky stuff needs to get through your system for...
Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...
I was diagnosed 7 months ago with discoid lupus-then they call me and say it might not be lupus and are now looking for scleroderma...ok...now they send me my...
epidermis,papillary dermis,<br>they say the epidermis shows papakeratosis with focal vacuolization.<br>sarcoid<br>granuloma annulare<br>also--my mch and mchc...
I am pretty sure that you can't but I am not 100% sure, I am sure this was one of the questions my Mother asked when the SD was finally diagnosed. But maybe ...
Scleroderma is NOT contagious. There's no "scleroderma germ." It's the result of your own body's immune system overreacting to known or unknown triggers (known...
Hi. I just foudn this club and was wondering if anybody out there ever lost a parent to scleroderma. I did about 12 years ago. It's still hard on a day to day...
Hi Cheri<br><br>Well My Mum was diagnosed with SD about 4 years, it is really taken its toll and the affects it has on my Mum is on the increase. She is also ...
Dear Cheri,<br><br>I lost my mother to this horrible disease on January 27th of this year. My mother was a hard workingwomen her entire life and had to in ...
Hi Anet<br><br>Firstly I am so very sorry to hear of you loss, this disease is horrible.<br><br>My Mum was diagnosed with SD about 4 years ago, this was after...
sorry i have been mia...things have been crazy on this end! busy, busy, busy! Glad to see so many of you posting!<br><br>Hope everyone is doing well...i keep...
You are right, I also live in NY and I'm so glad it is over. I couldn't resist the heat and had to stayed home under AC all day. I hope the Electricity bill...
Hi Chereller,<br><br>I'm not a Doctor or stocks holder of the company, only a scleroderma patient. I'm taking this medication for over eight months and it had ...
My sister was diagnosed w/raynauds syndrom about 10 years ago,scleroderma later.She's never been one to talk when things get tough in her life(which is really...
Hi Lynne<br><br>I really do sympathise with you, my mother was diagnosed about 3 years with sceleraderma, this after many visits to the hospital to find out...
My mother took a dose of the above back in march of this year I personally feel that it did not do anything noticeably better and in fact a few weeks after my...
It was probably used to dilate blood vessels - is your mom having problems with finger ulcers or other affects from Raynaud's? Iloprost was shown to work well ...
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