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Reply | Forward Message #300 of 612 |
Scleroderma Family Registry

<a href=http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html
target=new>http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html</a>




Wed Jun 27, 2001 2:14 pm

blue-eyes-1012
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Message #300 of 612 |
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problem seems to be that she hasn't worked in 17 + years, cause before she got sd she stayed home to take care of me and my younger sister....so she hasn't ...
blue-eyes-1012
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Jun 20, 2001
5:06 pm

<a href=http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html target=new>http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html</a>...
blue-eyes-1012
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Jun 27, 2001
2:14 pm

Hello Francine. Are you taking any medications like Plaquenil? I have read that that can cause vision problems. Just an FYI. Take care of yourself!...
dnickelson
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Jun 27, 2001
5:56 pm

here is another article related to the other one that was posted...<br><br><a href=http://www.nih.gov/niams/news/sclero_01.htm...
blue-eyes-1012
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Jul 3, 2001
1:22 pm

There's a Yahoo Group for discussing governmental issues as they relate to our disease (research funding, healthcare reform, etc.) Come and get invovled!<br><a...
alby40
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Jul 5, 2001
1:19 pm

Can anyone give me any information on it? My aunt is thinking about taking. what do you guys think....
ccherreller
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Jul 11, 2001
6:17 pm

Hi,my best friend of 14 years was diagnosed about 2 years ago with scleroderma. She has had arthitritis since she was about 6. I had and still really have no...
sams_96
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Jul 14, 2001
12:11 am

I thought I should reply to your note, my Mother suffers from SD and was diagnosed about 4 years ago. She has the type which has affected her stomach and skin....
kentishlad_1999
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Jul 14, 2001
9:37 pm

I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...
alby40
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Jul 15, 2001
12:30 am

Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...
yobeca
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Jul 15, 2001
4:42 pm

does any one know what a barium swallow is for?<br>I had a bunch of tests done today and that was one of them.also it took 2.5 hours after swallowing the ...
sherry_penman
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Jul 20, 2001
5:31 am

My Mother has had a couple of Barium meals which is what they are called here in UK. The time may vary as the chalky stuff needs to get through your system for...
kentishlad_1999
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Jul 20, 2001
5:34 am

This is a pretty nice explanation of what a barium swallow test is for as well as how the test is done:<br><a...
alby40
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Jul 20, 2001
2:44 pm

Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...
kentishlad_1999
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Jul 21, 2001
5:59 pm

I was diagnosed 7 months ago with discoid lupus-then they call me and say it might not be lupus and are now looking for scleroderma...ok...now they send me my...
sherry_penman
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Jul 25, 2001
4:25 am

I would suggest maybe writing the words down, They are quite a few members here and I am sure some will be able to help or at least its worth a go!...
kentishlad_1999
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Jul 25, 2001
4:50 am

epidermis,papillary dermis,<br>they say the epidermis shows papakeratosis with focal vacuolization.<br>sarcoid<br>granuloma annulare<br>also--my mch and mchc...
sherry_penman
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Jul 25, 2001
3:54 pm

Here's a site that explains the mhc and mchc.<br><a href=http://www.healthcentral.com/mhc/top/003648.cfm...
alby40
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Jul 25, 2001
5:29 pm

GOOD MORNING everyone!!!!!<br>hope today finds everyone well and feeling fine.have a good day.<br>HAPPY BIRTHDAY JENNIFER!!!!!<br> sherry...
sherry_penman
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Jul 27, 2001
3:11 pm

Hello everybody-Does anyone know if you can get lupus or sclerorderma from a blood transfusion?<br>Thanks for any help....sherry p...
sherry_penman
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Jul 30, 2001
4:45 am

I am pretty sure that you can't but I am not 100% sure, I am sure this was one of the questions my Mother asked when the SD was finally diagnosed. But maybe ...
kentishlad_1999
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Jul 30, 2001
5:01 am

Scleroderma is NOT contagious. There's no "scleroderma germ." It's the result of your own body's immune system overreacting to known or unknown triggers (known...
alby40
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Jul 30, 2001
4:02 pm

thanks for the imformation.You have been very helpful!!<br>sherry p...
sherry_penman
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Jul 31, 2001
2:39 am

Hi. I just foudn this club and was wondering if anybody out there ever lost a parent to scleroderma. I did about 12 years ago. It's still hard on a day to day...
cheri_dorwart
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Jul 31, 2001
3:00 am

Hi Cheri<br><br>Well My Mum was diagnosed with SD about 4 years, it is really taken its toll and the affects it has on my Mum is on the increase. She is also ...
kentishlad_1999
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Jul 31, 2001
4:51 am

Dear Cheri,<br><br>I lost my mother to this horrible disease on January 27th of this year. My mother was a hard workingwomen her entire life and had to in ...
anet_90065
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Aug 2, 2001
6:37 am

Hi Anet<br><br>Firstly I am so very sorry to hear of you loss, this disease is horrible.<br><br>My Mum was diagnosed with SD about 4 years ago, this was after...
kentishlad_1999
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Aug 2, 2001
7:04 am

sorry i have been mia...things have been crazy on this end! busy, busy, busy! Glad to see so many of you posting!<br><br>Hope everyone is doing well...i keep...
blue-eyes-1012
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Aug 2, 2001
3:39 pm

hi...how is everyone surviving the heat wave...looks like it's almost over here in ny state...
blue-eyes-1012
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Aug 10, 2001
4:27 pm

You are right, I also live in NY and I'm so glad it is over. I couldn't resist the heat and had to stayed home under AC all day. I hope the Electricity bill...
yobeca
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Aug 12, 2001
11:02 pm
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