I feel for you so much. My mother passed away February 9th while I was holding her hand. I miss her every day, but I know that she is in a better place, they...

I appreciate your prayers. We need as much of those as we can get. I'm deeply sorry for your loss. YOu are right when you say that she is in a better place,...

hi all....just a reminder...june is SD awarness month...feel free to use the graphic to promote awareness...let me know if you would like a "plainer" one.......

Does any one have problems with their eyes,and is it related to Scleroderma,like is this part suppose to happen.would like to know more please email Francine...

I would like the oppertunity to chat with other members....

Hi I am a female,with SD my email is flflow@......

this is a copy of a e-mail i recieved...though some of you may be interested...<br><br>i also belong to the e-mail group the 2 messages came ...

hi francine....my mom (who has SD) has probelms with her eyes being dry sometimes...what kind of eye problems?...

hi....a note to eveyone....remember we have a chat room here at the club....anyone who owuld be interested let me know, maybe we can find a good time to get...

Have you been to the SSD website?<br><a href=http://www.ssa.gov/disability/ target=new>http://www.ssa.gov/disability/</a><br><br>About.com also has a good area...

thanks amy....hehe...didn't think about the ssa site...hehe...

problem seems to be that she hasn't worked in 17 + years, cause before she got sd she stayed home to take care of me and my younger sister....so she hasn't ...

<a href=http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html target=new>http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html</a>...

Hello Francine. Are you taking any medications like Plaquenil? I have read that that can cause vision problems. Just an FYI. Take care of yourself!...

here is another article related to the other one that was posted...<br><br><a href=http://www.nih.gov/niams/news/sclero_01.htm...

There's a Yahoo Group for discussing governmental issues as they relate to our disease (research funding, healthcare reform, etc.) Come and get invovled!<br><a...

Can anyone give me any information on it? My aunt is thinking about taking. what do you guys think....

Hi,my best friend of 14 years was diagnosed about 2 years ago with scleroderma. She has had arthitritis since she was about 6. I had and still really have no...

I thought I should reply to your note, my Mother suffers from SD and was diagnosed about 4 years ago. She has the type which has affected her stomach and skin....

I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...

Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...

does any one know what a barium swallow is for?<br>I had a bunch of tests done today and that was one of them.also it took 2.5 hours after swallowing the ...

My Mother has had a couple of Barium meals which is what they are called here in UK. The time may vary as the chalky stuff needs to get through your system for...

This is a pretty nice explanation of what a barium swallow test is for as well as how the test is done:<br><a...

Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...

I was diagnosed 7 months ago with discoid lupus-then they call me and say it might not be lupus and are now looking for scleroderma...ok...now they send me my...

I would suggest maybe writing the words down, They are quite a few members here and I am sure some will be able to help or at least its worth a go!...

epidermis,papillary dermis,<br>they say the epidermis shows papakeratosis with focal vacuolization.<br>sarcoid<br>granuloma annulare<br>also--my mch and mchc...