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Scleroderma Friends and Family   Message List  
Reply | Forward Message #284 of 612 |
more sd media coverage...

also received this...<br><br>&lt;&lt;There are
three media projects that are completed on the
Scleroderma cluster<br>in South Boston, Mass, where I live.
The first is the PBS show, Health<br>Week.<br>They
have done a documentary on Scleroderma and it is
scheduled to air in<br>the<br>next week or so. The producer
is Loren Goldfarb and he can be contacted at
1<br>202-261-1612 for verification. Night Line, is going to air a
segment of this<br>film either tomorrow night (3/29) or
friday night. SELF Magazine has done a<br>story about
lupus/scleroderma. It was supposed to be in May's edition
but<br>will be in June's edition. Hopefully that will not
change again. the<br>reporters are Doreen Vignue and
beth dailey from the Boston Globe. I can<br>verify
this because I was one of the woman interviewed and
taped. My hope<br>is<br>that you can get the word out so
everyone can see it. Thanks and please<br>don't hesitate
to contact me. Liz Lombard<br><br>***<br><br>For
links to the stations listed above, please
see:<br><br>News by Scleroderma from A to
Z<br><a href=http://www.sclero.org/news/a-to-z.html
target=new>http://www.sclero.org/news/a-to-z.html</a><br><br>Warm
Hugs,<br><br>Shelley Ensz<br>Scleroderma from A
to Z<br><a href=http://www.sclero.org
target=new>http://www.sclero.org</a><br>Now available in 11
languages<br>&gt;&gt;




Fri Mar 30, 2001 2:16 pm

blue-eyes-1012
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Message #284 of 612 |
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hi guys...got this in my e-mail...thought you might be interested...it's from the SD foundation<br><br>&lt;&lt;We have known for some time that the TV show ...
blue-eyes-1012
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Mar 30, 2001
2:13 pm

also received this...<br><br>&lt;&lt;There are three media projects that are completed on the Scleroderma cluster<br>in South Boston, Mass, where I live. The...
blue-eyes-1012
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Mar 30, 2001
2:16 pm

it's been so quiet in here for months...i've been so busy! anyone feel like checking in....how are things going?<br><br>D...
blue-eyes-1012
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May 25, 2001
1:21 pm

here is a url for another SD board on line....in case anyone is interested...<br><br><a href=http://pub59.ezboard.com/bsclerodermadiscussionboard...
blue-eyes-1012
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May 25, 2001
1:22 pm

could you guys check that your e-mail is correct in the e-mail section....i get alot of returns when i send out group e-mail! thanks!!<br><br>D...
blue-eyes-1012
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May 25, 2001
1:31 pm

I feel for you so much. My mother passed away February 9th while I was holding her hand. I miss her every day, but I know that she is in a better place, they...
nomi1_99
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Jun 6, 2001
6:20 pm

I appreciate your prayers. We need as much of those as we can get. I'm deeply sorry for your loss. YOu are right when you say that she is in a better place,...
sweetgal56_2001
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Jun 7, 2001
9:27 pm

hi all....just a reminder...june is SD awarness month...feel free to use the graphic to promote awareness...let me know if you would like a "plainer" one.......
blue-eyes-1012
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Jun 11, 2001
1:24 pm

Does any one have problems with their eyes,and is it related to Scleroderma,like is this part suppose to happen.would like to know more please email Francine...
flflow1
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Jun 15, 2001
4:53 am

I would like the oppertunity to chat with other members....
cass40uk
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Jun 15, 2001
10:31 am

Hi I am a female,with SD my email is flflow@......
flflow1
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Jun 17, 2001
4:58 am

this is a copy of a e-mail i recieved...though some of you may be interested...<br><br>i also belong to the e-mail group the 2 messages came ...
blue-eyes-1012
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Jun 20, 2001
1:31 pm

hi francine....my mom (who has SD) has probelms with her eyes being dry sometimes...what kind of eye problems?...
blue-eyes-1012
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Jun 20, 2001
1:33 pm

hi....a note to eveyone....remember we have a chat room here at the club....anyone who owuld be interested let me know, maybe we can find a good time to get...
blue-eyes-1012
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Jun 20, 2001
1:34 pm

Have you been to the SSD website?<br><a href=http://www.ssa.gov/disability/ target=new>http://www.ssa.gov/disability/</a><br><br>About.com also has a good area...
alby40
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Jun 20, 2001
1:49 pm

thanks amy....hehe...didn't think about the ssa site...hehe...
blue-eyes-1012
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Jun 20, 2001
4:54 pm

problem seems to be that she hasn't worked in 17 + years, cause before she got sd she stayed home to take care of me and my younger sister....so she hasn't ...
blue-eyes-1012
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Jun 20, 2001
5:06 pm

<a href=http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html target=new>http://dailynews.yahoo.com/h/nm/20010626/hl/registry_2.html</a>...
blue-eyes-1012
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Jun 27, 2001
2:14 pm

Hello Francine. Are you taking any medications like Plaquenil? I have read that that can cause vision problems. Just an FYI. Take care of yourself!...
dnickelson
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Jun 27, 2001
5:56 pm

here is another article related to the other one that was posted...<br><br><a href=http://www.nih.gov/niams/news/sclero_01.htm...
blue-eyes-1012
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Jul 3, 2001
1:22 pm

There's a Yahoo Group for discussing governmental issues as they relate to our disease (research funding, healthcare reform, etc.) Come and get invovled!<br><a...
alby40
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Jul 5, 2001
1:19 pm

Can anyone give me any information on it? My aunt is thinking about taking. what do you guys think....
ccherreller
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Jul 11, 2001
6:17 pm

Hi,my best friend of 14 years was diagnosed about 2 years ago with scleroderma. She has had arthitritis since she was about 6. I had and still really have no...
sams_96
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Jul 14, 2001
12:11 am

I thought I should reply to your note, my Mother suffers from SD and was diagnosed about 4 years ago. She has the type which has affected her stomach and skin....
kentishlad_1999
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Jul 14, 2001
9:37 pm

I'm not familiar with what in scleroderma would cause your friend's back to be red except for small, damaged blood vessels called telangectasia. We mostly get ...
alby40
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Jul 15, 2001
12:30 am

Hi Mike,<br><br>Sorry to hear about your mom's disease. I also have Scleroderma it is diffusive, and it damaged my lungs. Right now I'm on the waiting list for...
yobeca
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Jul 15, 2001
4:42 pm

does any one know what a barium swallow is for?<br>I had a bunch of tests done today and that was one of them.also it took 2.5 hours after swallowing the ...
sherry_penman
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Jul 20, 2001
5:31 am

My Mother has had a couple of Barium meals which is what they are called here in UK. The time may vary as the chalky stuff needs to get through your system for...
kentishlad_1999
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Jul 20, 2001
5:34 am

This is a pretty nice explanation of what a barium swallow test is for as well as how the test is done:<br><a...
alby40
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Jul 20, 2001
2:44 pm

Well my mother has been back to London to see Professor Black last Tuesday, it would appear now that she is becoming immune to the medication and has now been...
kentishlad_1999
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Jul 21, 2001
5:59 pm
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