Search the web
Sign In
New User? Sign Up
sclerodermafriendsandfamily · for those of us also affected.
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Scleroderma Friends and Family   Message List  
Reply | Forward Message #232 of 612 |
Re: Medication

Catt<br>I apologize for not getting back to you
sooner. Caitlin is off track, so we have been having fun.
She is 11. I read a later post of yours too.
Initionally I was told by a pediatric dermotologist that
Caitlin had morphea too. Hers, started on her upper
thigh, but the biopsy on her lower calf showed
slceroderma too, but you couldn't see anything yet. That is
when I was told it was linear scleroderma, which
usually runs in a line from hip to ankle. The
discoloration is starting on her calf, but also on her right
arm (same side). I changed rheumatologist when
"Mickey" started growing so fast. The first rheumatologist
refused to treat her with methotrexate until it was in
advanced stages. Now somehow, I find that nuts, especially
when methrotrexate works most of the time on kids,
(according to what I have found). She does have to have
monthly blood work to make sure the methotrexate isn't
damaging her liver. I would certainly go that route any
day rather then wait until she is really disfigured
and stiff. Patti




Thu Nov 2, 2000 1:03 am

pattimking
Send Email Send Email

Forward
Message #232 of 612 |
Expand Messages Author Sort by Date

hi and welcome! hope you find the answers you are looking for here! check out the links section of the club...there are many places there you can start to...
blue-eyes-1012
Offline Send Email
Nov 1, 2000
2:03 pm

Catt<br>I apologize for not getting back to you sooner. Caitlin is off track, so we have been having fun. She is 11. I read a later post of yours too. ...
pattimking
Offline Send Email
Nov 2, 2000
1:03 am

Hi Chatt,<br>I'am the one that has morphea. Thank you for sharing your daughers case of morphea with me. I was diagnosed with morphea about four years ago, I...
julie_a_stadther
julie_a_stad...
Offline Send Email
Nov 4, 2000
7:44 am

just when things witn my mom were going ok....she had to go to have a heart monitor put on for 24 hours...seems her pulse was almost non existant for about a ...
blue-eyes-1012
Offline Send Email
Nov 6, 2000
1:59 pm

well...with the "state of our union" today...hehehe...what a mess....anyway...<br><br> in another club i belong to we have been talking about help with ...
blue-eyes-1012
Offline Send Email
Nov 8, 2000
2:13 pm

UPDATE: doc said today...there are periods in the results that her heart beats to fast...so maybe she doesn't get a pulse cause it's to fast to catch...so he ...
blue-eyes-1012
Offline Send Email
Nov 8, 2000
5:41 pm

anyone out there? how about your plans for thanksgiving?...
blue-eyes-1012
Offline Send Email
Nov 20, 2000
11:21 pm

Lets see...<br>My youngest, Jessi, will be staying with her dad for T-day.<br>My 2 older girls are spending the day together at my oldest's new place.<br>My ...
cattm42
Offline Send Email
Nov 21, 2000
3:08 pm

My mother, my best friend was not able to have Thanksgiving with us this year as she was in the hospital. My mother has systemic scleroderma. She was diagnosed...
ravetoo
Offline Send Email
Nov 24, 2000
8:23 am

wow catt...sounds like you'll be busy!...
blue-eyes-1012
Offline Send Email
Nov 24, 2000
2:20 pm

wow susan...sounds like you r mom is quite a fighter too....will keep you al in my prayers...let me know how things turn out...<br><br>we have been doing a lot...
blue-eyes-1012
Offline Send Email
Nov 24, 2000
2:25 pm

my mom needs a new pair of winter boots...anyone know where i can find a pair that zips on both sides of the ankle? they would be ideal for her to get into......
blue-eyes-1012
Offline Send Email
Nov 24, 2000
2:46 pm

Sorry to hear that things have progressed so swiftly. Your mother sound like a very strong person and so do you. She is lucky to have someone to help her ...
cattm42
Offline Send Email
Nov 24, 2000
2:49 pm

You have all they prayers I can round up. Your mother is also lucky to have you fighting for her. Hang in there. Chin up.<br><br>Catt.....
cattm42
Offline Send Email
Nov 24, 2000
2:50 pm

Hi, I have just joined this club, My Mum suffers from scleroderma which was diagnosed three years ago.<br><br>One of the things we are trying to find out is ...
kentishlad_1999
Offline Send Email
Nov 26, 2000
11:02 am

welcome!! :)...
blue-eyes-1012
Offline Send Email
Nov 28, 2000
12:39 pm

I WOULD JUST LIKE TO WISH EVERYONE A VERY MERRY CHRISTMAS AND A HAPPY NEW YEAR. YOU ARE ALL IN MY PRAYERS AND GOD BLESS YOU....
ravetoo
Offline Send Email
Nov 30, 2000
7:26 am

Merry Christmas & Happy New Year to you also!!!!!!!!!!!!!!!!!!!!!!<br>God Bless You,<br> Dee...
deesweetp
Offline Send Email
Dec 2, 2000
3:01 am

hope you are all enjoying the holiday season....got all your shopping done?<br><br>hey...here is a shopping idea.... <a...
blue-eyes-1012
Offline Send Email
Dec 6, 2000
2:40 pm

Hello Everyone!<br> I am wishing you all a very Merry Christmas and I hope this season is very bright and happy for everyone!<br> With Love and Christmas ...
my_prescious_izzybelle
my_prescious...
Offline Send Email
Dec 8, 2000
2:47 pm

Best wishes to all for a wonderful Christmas and a great New Year.<br><br>((((((((((Hugs to all))))))))))))))<br><br>Catt.....
cattm42
Offline Send Email
Dec 8, 2000
5:23 pm

Hello!<br> I hope everyone is feeling well this Christmas season. I love Christmas and I just love winter, period. I hope everyone gets a high on this time of...
my_prescious_izzybelle
my_prescious...
Offline Send Email
Dec 10, 2000
3:07 am

i bet everyone is busy with holiday stuff, but how are things? i know the weather here has been ridicilus! cold, rainy, snowy, icy....you name it we've had ...
blue-eyes-1012
Offline Send Email
Dec 15, 2000
1:28 pm

Hello All,<br><br>My name is Vince, I am from Niagara Falls, NY and I just wanted to say hello and introduce myself. My mother has had SD for 6 years now ...
vicor80972
Offline Send Email
Dec 22, 2000
4:25 am

welcome vince and welcome Pat (message by e-mail). glad to have both of you here!...
blue-eyes-1012
Offline Send Email
Dec 22, 2000
2:13 pm

Surprise! You've just received a Yahoo! Greeting<br>from "Diane" (blue-eyes-1012@...)!<br><br>To view this greeting card, click on the following<br>Web ...
blue-eyes-1012
Offline Send Email
Dec 22, 2000
2:38 pm

so how was everyone's christmas? any plans for new years?...
blue-eyes-1012
Offline Send Email
Dec 27, 2000
2:09 pm

HELLO,<br> I HOPE EVERYONE HAS A VERY HAPPY NEW YEAR IN 2001!! I HOPE THAT ALL THE HEALTH PROBLEMS YOU MAY HAVE HAD THIS PAST YEAR WILL GET BETTER THIS YEAR!...
my_prescious_izzybelle
my_prescious...
Offline Send Email
Dec 31, 2000
2:47 am

(article)<br><a href=http://www.11alive.com/health/health_top_story.asp?storyid=3744...
blue-eyes-1012
Offline Send Email
Dec 31, 2000
4:40 pm

check this out...some of my mom's meds were listed....she just need to have her doctor call them....<br><br><a href=http://phrma.org...
blue-eyes-1012
Offline Send Email
Dec 31, 2000
4:54 pm
 First  |  |  Last 
< Prev Topic  |  Next Topic >
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help