here's an inside scoop....just recieved in an e-mail...<br><br><This is a reminder that the ABC TV movie "For Hope" will be re-aired on Monday night, July...
Folks, I _have_ seen the movie (have a tape, too) and it can be quite frightening if you don't have a full understanding of the variability of scleroderma. I...
I believe Ronni and friends will have their usual AOL scleroderma chat (10:00P EDT in the Better Health area of AOL - AOL members only) on Monday, which would ...
i wanted to stress that same point...i have also seen the movie...adn remember my first thoughts...i saw the movie the last ttime it was on, adn it wasn't ...
Don't forget we will be chatting here tomorrow about the movie, or anyhting else you'd like to talk about at 2 pm EDT and 5 pm EDT...sorry...will not be able...
alby40:<br><br>Thank you for your balanced email in response to concerns about the movie. My partner Michelle has<br>been recently diagnosed with systemic ...
Sorry I missed you all at chat. The movie wasn't as I remembered it. To all of you who have Scleraderma hang in there,and to those of you who have a loved one...
LOL - that acutally may be the best way for a newbie to watch that movie. To be honest,parts of it still got to me, like when Hope was finally diagnosed....
parts go to me too...even though my mom has the external aspect only...knock on wood....so far....for 16 years. i was crying lots....even knowing all i ...
but that's why we're here...we need to keep fighting ...for ourselves...and our family members....we<br> need to do all we can to stay on top of things...on...
how's everyone doing? enjoying your summer? I hope to be adding some banners and butons soon, so that you can post them to your web pages, or attach them to...
Since the movie was shown on ABC and featured The Scleroderma Research Foundation, I'd hoped one of them would offer it for sale, but I don't see it listed on...
6 months ago, my aunt was diagnosed with scleroderma. and today i found out that my mom's cousin has it too. and there have been 2 more people in my family to ...
hi...welcome! hmmm...that's interesting...form what i have read and understand it doesn't seem to be hereditary....ineresting...maybe some of the others know...
This short article might help explain the difference between "heredity" and "genetic."<br><a href=http://www.ihavescleroderma.com/pages/heredity.htm...
Sweetness,<br>My sister died 3 years ago with this awful disease, to try and put your mind at ease all the research I have done says it is not hereditry.Hang...
recent diagnosis of crest and way old diagnosis of reynauds. life adjustments are many and the meds seem to increase by the week but i am still kicking and...
Hi, I have been looking around and found this was a good place. I have a 13 year-old dauther that was diagnosed with SD (linear?). It has so far affected her ...
Here's info on the Juvenile Scleroderma Network<br>-------<br>The Juvenile Scleroderma Network Inc. (JSDN) connects families to a support network for children...
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