here's an inside scoop....just recieved in an
e-mail...<br><br>&lt;This is a reminder that the ABC TV movie "For Hope"
will be re-aired on Monday night, July 10th, in the
United<br>States. <br> <br>Although I've never seen it, I
understand that it is an emotionally-charged film, with a
very sad ending, and it<br>may give some viewers the
idea that scleroderma is always rapidly fatal. The
flip side of this coin is that the<br>movie also goes
a very long ways in raising awareness of
scleroderma, and of the desperate need for a cure.<br> <br>The
movie was produced in memory of Bob Saget's ("America's
Funniest Home Videos") sister, who died of<br>scleroderma.
It also features a cameo appearance by Sharon
Monsky, who is founder and head of the<br>Scleroderma
Research Foundation.<br> <br>If you wish, you may refer
folks to the new Scleroderma Federation ("ScleroFed")
at www.sclerofed.org . We will<br>be happy to mail
anyone in the world a free copy of the ScleroFed "What
is Scleroderma?" brochure (in English). <br>You may
also refer folks to the ScleroFed hotline number at
1-877-794-0347. <br> <br>People may also email their name and
address to info@... to be sent the brochure, or
you may take<br>down that information and email it to
us, if you are dealing with phone inquiries. (Please
be sure to tell them that<br>you will be "passing it
on" to us, and also make a point of following through
by doing so ASAP.)<br> <br>You can check the
listings in your area on the ABC web site at
<a href=http://abc.go.com/ target=new>http://abc.go.com/</a> . Monday 8pm/7pm
Central.<br> <br>• let your
friends, family, and co-workers know about the show,
preferably with a warning that it portrays a<br>worst-case
scenario<br> <br><br>Warm Hugs,<br> <br>Shelley Ensz,
President<br>Scleroderma Federation<br>7400 Metro Blvd, Suite
100<br>Edina, MN 55439<br>Toll Free Hotline
1-877-794-0347<br><a href=http://www.sclerofed.org
target=new>http://www.sclerofed.org</a> <br>Email:shelley@...
&gt;<br><br><br>How about a chat on Tuesday to talk about hte movie?
How about 2 PM EST. and 5 PM EST. Sorry I' will not
be availible in the evenings....