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Reply | Forward Message #120 of 612 |
hi everyone...

How about a chat??? Are mornings and afternoons ok for anyone? let me
know...evenings aren't the best for me, but we may be able to work something
out...give me some feed back




Wed Jun 21, 2000 1:04 pm

blue-eyes-1012
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Message #120 of 612 |
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Dear La_Dama<br>I am very sorry to hear about your sister. Try an alovera lotion and benedryl for the itching. How ever if she is on other meds. which I'm sure...
Beanie_1959
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Jun 19, 2000
11:00 pm

How about a chat??? Are mornings and afternoons ok for anyone? let me know...evenings aren't the best for me, but we may be able to work something out...give...
blue-eyes-1012
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Jun 21, 2000
1:04 pm

hi blue eyes<br>evenings are better for me or ant yime on mondays can't wait til the chat gets started....
Beanie_1959
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Jun 25, 2000
5:53 pm

thought i'd pass this along to you...<br><br>The Scleroderma Federation was launched June 28, 2000, by the group formerly known as<br>the Scleroderma...
blue-eyes-1012
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Jun 30, 2000
1:07 pm

Just wanted to let everyone know the story ahout Bob Sagot's sister is on again Monday night check your local listings. This is a very good movie as I havs...
Beanie_1959
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Jul 8, 2000
8:39 pm

here's an inside scoop....just recieved in an e-mail...<br><br>&lt;This is a reminder that the ABC TV movie "For Hope" will be re-aired on Monday night, July...
blue-eyes-1012
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Jul 9, 2000
2:40 pm

<a href=http://dailynews.yahoo.com/h/ap/20000709/hl/exp_fitness_women_1.html...
alby40
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Jul 9, 2000
8:55 pm

Folks, I _have_ seen the movie (have a tape, too) and it can be quite frightening if you don't have a full understanding of the variability of scleroderma. I...
alby40
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Jul 9, 2000
9:13 pm

I believe Ronni and friends will have their usual AOL scleroderma chat (10:00P EDT in the Better Health area of AOL - AOL members only) on Monday, which would ...
alby40
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Jul 9, 2000
9:17 pm

I have also seen the movie and didn't mean to offend anyone or scare them. However I have lived this night mare....
Beanie_1959
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Jul 9, 2000
9:23 pm

Glad to see you're beating it!...
alby40
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Jul 9, 2000
9:32 pm

i wanted to stress that same point...i have also seen the movie...adn remember my first thoughts...i saw the movie the last ttime it was on, adn it wasn't ...
blue-eyes-1012
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Jul 10, 2000
2:25 pm

Don't forget we will be chatting here tomorrow about the movie, or anyhting else you'd like to talk about at 2 pm EDT and 5 pm EDT...sorry...will not be able...
blue-eyes-1012
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Jul 10, 2000
2:32 pm

missed all of you at 2 PM....leave a message about what you thought of the movie....questions...or comments......
blue-eyes-1012
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Jul 11, 2000
6:13 pm

alby40:<br><br>Thank you for your balanced email in response to concerns about the movie. My partner Michelle has<br>been recently diagnosed with systemic ...
theo_trish
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Jul 11, 2000
10:34 pm

Sorry I missed you all at chat. The movie wasn't as I remembered it. To all of you who have Scleraderma hang in there,and to those of you who have a loved one...
Beanie_1959
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Jul 11, 2000
11:23 pm

LOL - that acutally may be the best way for a newbie to watch that movie. To be honest,parts of it still got to me, like when Hope was finally diagnosed....
alby40
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Jul 11, 2000
11:40 pm

I have to agree with alby40 this disease stinks.In my opinion it is the most horrible one out there I think it ranks right up there with aids....
Beanie_1959
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Jul 12, 2000
12:17 pm

parts go to me too...even though my mom has the external aspect only...knock on wood....so far....for 16 years. i was crying lots....even knowing all i ...
blue-eyes-1012
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Jul 12, 2000
1:59 pm

but that's why we're here...we need to keep fighting ...for ourselves...and our family members....we<br> need to do all we can to stay on top of things...on...
blue-eyes-1012
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Jul 12, 2000
2:04 pm

hang in there blue eyes...
Beanie_1959
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Jul 13, 2000
1:02 am

how's everyone doing? enjoying your summer? I hope to be adding some banners and butons soon, so that you can post them to your web pages, or attach them to...
blue-eyes-1012
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Jul 16, 2000
12:32 am

was just playing around, adn came across this...<br><a href=http://wwwtmp.sclero.org/support/caregivers/a-to-z.html...
blue-eyes-1012
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Jul 16, 2000
12:45 am

Hi. I was out of town on business when the movie aired and I forgot to remind my husband to tape it. Does anyone know where I can buy a copy of the...
rpmkayak
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Jul 20, 2000
2:34 am

let me see what i can find out for you......
blue-eyes-1012
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Jul 20, 2000
1:10 pm

Since the movie was shown on ABC and featured The Scleroderma Research Foundation, I'd hoped one of them would offer it for sale, but I don't see it listed on...
alby40
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Jul 21, 2000
12:40 pm

thanks for your help amie.......
blue-eyes-1012
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Jul 21, 2000
1:42 pm

Hi! Please visit my scleroderma website at <a href=http://community.webtv.net/DudleyDelany/EDGARCAYCES1...
dudley_delany
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Jul 22, 2000
6:04 pm

6 months ago, my aunt was diagnosed with scleroderma. and today i found out that my mom's cousin has it too. and there have been 2 more people in my family to ...
sweetness_ghs
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Jul 23, 2000
5:36 am

hi...welcome! hmmm...that's interesting...form what i have read and understand it doesn't seem to be hereditary....ineresting...maybe some of the others know...
blue-eyes-1012
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Jul 23, 2000
1:15 pm
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