i received this in an e-mail this morning -<br><br>It was just confirmed that Entertainment Tonight will be airing the Tylyn<br>John Feature at 7:30 p.m. EST,...
SD Foundation is meeting at the Today show on Monday the 12th to promote June as SD Awareness month...if you can go adn meet up with them ...if not tune in to...
My sister has had scleroderma for 10 years. It has affected her entire body. She has severe itching and we do not know what to do to make her more comfortable....
My partner Michelle has severe itching as well. <br>We put cream all over her twice a day. As well, her doctor prescribed benadryl (?) or the itching. It seems...
Dear La_Dama<br>I am very sorry to hear about your sister. Try an alovera lotion and benedryl for the itching. How ever if she is on other meds. which I'm sure...
How about a chat??? Are mornings and afternoons ok for anyone? let me know...evenings aren't the best for me, but we may be able to work something out...give...
thought i'd pass this along to you...<br><br>The Scleroderma Federation was launched June 28, 2000, by the group formerly known as<br>the Scleroderma...
Just wanted to let everyone know the story ahout Bob Sagot's sister is on again Monday night check your local listings. This is a very good movie as I havs...
here's an inside scoop....just recieved in an e-mail...<br><br><This is a reminder that the ABC TV movie "For Hope" will be re-aired on Monday night, July...
Folks, I _have_ seen the movie (have a tape, too) and it can be quite frightening if you don't have a full understanding of the variability of scleroderma. I...
I believe Ronni and friends will have their usual AOL scleroderma chat (10:00P EDT in the Better Health area of AOL - AOL members only) on Monday, which would ...
i wanted to stress that same point...i have also seen the movie...adn remember my first thoughts...i saw the movie the last ttime it was on, adn it wasn't ...
Don't forget we will be chatting here tomorrow about the movie, or anyhting else you'd like to talk about at 2 pm EDT and 5 pm EDT...sorry...will not be able...
alby40:<br><br>Thank you for your balanced email in response to concerns about the movie. My partner Michelle has<br>been recently diagnosed with systemic ...
Sorry I missed you all at chat. The movie wasn't as I remembered it. To all of you who have Scleraderma hang in there,and to those of you who have a loved one...
LOL - that acutally may be the best way for a newbie to watch that movie. To be honest,parts of it still got to me, like when Hope was finally diagnosed....
parts go to me too...even though my mom has the external aspect only...knock on wood....so far....for 16 years. i was crying lots....even knowing all i ...
but that's why we're here...we need to keep fighting ...for ourselves...and our family members....we<br> need to do all we can to stay on top of things...on...
how's everyone doing? enjoying your summer? I hope to be adding some banners and butons soon, so that you can post them to your web pages, or attach them to...
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