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sclerodermafriendsandfamily · for those of us also affected.

Group Information

  • Members: 99
  • Category: Scleroderma
  • Founded: Mar 2, 1999
  • Language: English
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Description

My mom has had SD for 25 years, and she is also a breast cancer survivor. She is a beautiful, and spirited woman who won't let it drag her down.

This group is for those of us who know someone with this rare disease, a place to talk, learn new things, ask questions, and share happiness and sorrows. Personally, I know I have questions, and wonderful stories to share about this rare affliction.

Feel free to post photos, and links using the tool bar to the left.

There are only a few "rules":
* be respectful of others
* when replying to an email - it is not necesary to leave all the "extra" stuff in the message - please delete it, and keep the message short.
* we are not doctors - we can speak from our experiences, but we are not professionals. if you need medical, or emotional attention, please seek that help in your local community. we can listen, empathize, etc. but, once again we are not doctors.
*just because it may work for one, it doesn't mean it works for all - please consult your doctor before "trying" something some one may suggest
* please send me a message (anytime) if there are any questions, or problems, or concerns.

BTW - here is our chat link http://chatshack.net/scleroderma .

Welcome aborad!

- diane
(aka dmcg1012)

Most Recent Messages

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my mom -
BTW - mom has an appointment with a cardiologist tomorrow. we are not sure why exactly. her doc wants her to go see him - and right away. mom had called and
Posted - Tue Nov 11, 2008 11:49 am
diane
dmcg1012
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Re: mama
that's awesome news! i'm actually taking my mom to the oncologist today too - but we already know that the cancer is gone - 5 years! so we are hoping the doc
Posted - Tue Nov 11, 2008 11:44 am
diane
dmcg1012
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Re: mama
Praise God he knows our needs.I hope your Mom continues to do well.   Candy Live each day as it was your last one. ... From: fanchermitzi
Posted - Tue Nov 11, 2008 1:32 am
Candy ( Renee) Richards
candy_rkr
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mama
Hello everybody it has been a while since I posted anything about mama. She has had a rough go of it, but she is doing ok now.. she had six rounds of chemo.
Posted - Tue Nov 11, 2008 1:29 am
fanchermitzi
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Re: Hi, New Here.
Hi Teena Welcome to the group. My Sister had Scleraderma it was a long process to get her dx with the right thing to unfortuantely she passed away 11 years
Posted - Wed Apr 30, 2008 2:21 pm
Candy ( Renee) Richards
candy_rkr
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 4 7 10 2 4
2007 16 12 1 1 1 12 12
2006 2 3 1
2005 1 1 2
2004 1 8 6 4
2003 8 2 4 3 2 3 7 2 2 1
2002 8 8 6 10 16 6 5 12 3 1
2001 11 4 8 3 14 22 36 7 7 9 10
2000 4 2 1 8 3 20 42 40 11 15 17 14
1999 17 13 9 12 11 6 7 3 2 4
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