Kim, The bladder augmentation and Malone procedures have allowed my daughter (now 14) to be more independent with the bathroom since she had it done around age...
Yes they do. The number to the SB clinic scheduling person ( her name is Christine) is 919-966-8813 I am sure she could answer any questions you may have. ...
Hi I am a 32 year old women with spina bifida. I wanted to talk to other women with a history of spina bifida who are pregnant or have gone through pregnancy....
Dear Friends, My daughter Emily has a Chiari Malformation II. When she was 1 month old the neurosurgeon wants to do a Cranial Decompression on her. We didn't...
My son's biggest issue before his decompression was gagging when he ate. He now has a significantly reduced gagging problem. When the decompression was done,...
i am so sorry to hear that kim. i will definitely keep her in my thoughts and prayers. Samantha ... From: casteel54 <casteel54@...> Subject: [SBAofNC]...
Your family is in my thoughts and prayers. I've wondered what has happened to you online. I hope Brittney makes a full recovery. I wish my parents and I...
hey everyone just wanted to tell you brittney is still in hospital we have been here 18 days. she is very sick she has had to have a blood transfusion and now...
i hope she gets better soon! ... From: casteel54 <casteel54@...> Subject: [SBAofNC] another update on brittney To: sbaofnc@yahoogroups.com Date: Sunday,...
Hi, Kim! My daughter Breanna had to have an NG (nasogastric) feeding tube through her nose for awhile to eat after she had her bladder augmentation and...
hello, just letting everyone know brittney is still in hospital she has been here 21 days now. she is very sick but dr thinks she is getting better everyday....
hello, i am having a heck of a time here. my daughter brittney just had her surgery in october and just got all her tubes out of her belly. i have to cath her...
Put Brittney laying down on her back and try that. We've been able to get it to work for Breanna that way when nothing else will. Also, sometimes we've angled...
Hang in there! There are little nuances to this Mit cathing. When you cath her try different angles. Try her at different angels. Sometimes I have to lower...
hello, my daughter brittney has a mace and we have to flush it with 260cc's of warm water and then she has a bowel movement, the goal is for her to not have...
Kim, I'm not sure how often you are flushing for her to have a bowel movement, but we have been successful with every 2 - 3 days for our daughter. Each time...
Hey It may take several weeks to get cleaned out and regulated. Good Luck Brandon PS-you are never on messenger anymore, did you block me? ... From:...
NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY http://www.jredwards.com/sba.asp The National Survey of the Spina Bifida Community, a national survey of adults...
NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY http://www.jredwards.com/sba.asp The National Survey of the Spina Bifida Community, a national survey of adults...
Hello everyone, I was wondering i anyone can help me. My daughter takes myrlax everyday if she doesnt take it she gets really constipated and has a lot of pain...
I don't post much but this one peaked my interested so I wanted to try and help. I am not sure if she can take Colace? That is another stool softner. Something...
Hello, My daughter is 4 and we went to the pool the other day and she was in the kiddy pool, She Has no feeling in her feet and she was moving around the pool...
I know they may be expensive but have you looked into LLBean or Lands End? Also check with Sears, JC Penney's or any other department store is in your area. I...
My son who just turned 8 has the same problem. We get him water shoes. Usually we find them at Walmarts, Toys R Us and Sports Authority. ... From: casteel54...
Hey, I made $634 this week working for google at home. This is the most money I've ever made and I only work 3-4 hrs a day. I'm recommending this to everyone!...
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