hi there my daughter is 3 and has spina bifida i was looking for people to talk to about this disability. [Non-text portions of this message have been removed]...
I was wanting to know if there is anybody out there that goes to doctors in Chapel Hill for their spina bifida issues? You can be a child or adult. I am...
Yes my son is seen exclusively at Chapel Hill. I had him at Duke but I DID NOT like their clinic. The Spina Bifida Clinic at UNC is great and all of the...
I go to doctors at duke too. I always have. I have recently gotten to where i dont like them either. Do I have to get a referral to get an appt with them? ... ...
has anyone had a bladder augmentation? my daughter is getting ready to have surgery on friday the 17th.she is also having the malone antegrade continence...
You just need to get your primary physician that treats whomever has SB to fax a referral. Then they will call you and make an appointment. Their clinic is...
yeah ive had a couple of the doctors to get on my nerves like that too. i was cathed when i was little but when i started middle school the doctor wanted to...
Yes Kim. I have had a bladder augmentation. I really couldnt tell you though what is done or what to expect. I was really young when i had it. Probably...
Use Google and type in bladder augmentation. There are lots of sights that come up and give good descriptions, etc. Do the same for malone procedure. Mari ... ...
Kim I am an adult with SB so if you want to talk feel free to email me. I am 37 I walk with braces and crutches, have full bladder and bowel control. Would ...
Kim, The bladder augmentation and Malone procedures have allowed my daughter (now 14) to be more independent with the bathroom since she had it done around age...
Yes they do. The number to the SB clinic scheduling person ( her name is Christine) is 919-966-8813 I am sure she could answer any questions you may have. ...
Hi I am a 32 year old women with spina bifida. I wanted to talk to other women with a history of spina bifida who are pregnant or have gone through pregnancy....
Dear Friends, My daughter Emily has a Chiari Malformation II. When she was 1 month old the neurosurgeon wants to do a Cranial Decompression on her. We didn't...
My son's biggest issue before his decompression was gagging when he ate. He now has a significantly reduced gagging problem. When the decompression was done,...
i am so sorry to hear that kim. i will definitely keep her in my thoughts and prayers. Samantha ... From: casteel54 <casteel54@...> Subject: [SBAofNC]...
Your family is in my thoughts and prayers. I've wondered what has happened to you online. I hope Brittney makes a full recovery. I wish my parents and I...
hey everyone just wanted to tell you brittney is still in hospital we have been here 18 days. she is very sick she has had to have a blood transfusion and now...
i hope she gets better soon! ... From: casteel54 <casteel54@...> Subject: [SBAofNC] another update on brittney To: sbaofnc@yahoogroups.com Date: Sunday,...
Hi, Kim! My daughter Breanna had to have an NG (nasogastric) feeding tube through her nose for awhile to eat after she had her bladder augmentation and...
hello, just letting everyone know brittney is still in hospital she has been here 21 days now. she is very sick but dr thinks she is getting better everyday....
hello, i am having a heck of a time here. my daughter brittney just had her surgery in october and just got all her tubes out of her belly. i have to cath her...
Put Brittney laying down on her back and try that. We've been able to get it to work for Breanna that way when nothing else will. Also, sometimes we've angled...
Hang in there! There are little nuances to this Mit cathing. When you cath her try different angles. Try her at different angels. Sometimes I have to lower...
hello, my daughter brittney has a mace and we have to flush it with 260cc's of warm water and then she has a bowel movement, the goal is for her to not have...
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