Hello, everyone. I have a 1996 Dodge Grand Caravan I am interested in selling. It has a fold-out ramp, lowered floor, hand controls, and removable seats. I am...
I have a 5 year old daughter with SB. This year we have had 2 surgeries, 4 total, and 1 in her near future. I would like to talk to someone who has SB or has a...
Hi! My name is Samantha. I am not 5 years old or am a parent with an SB child, but I have SB myself. I know what your daughter is going through. It's hard...
Hey my name is Jamie. I have a 3 year old daughter with Spina Bifida. Still learning about it myself but if you would like feel free to contact me. I would be...
hey Jamie! I have SB. I dont really remember what it was like for me at 3 years old, but I can certainly still talk to you. ... From: lost_star_vega...
Hi there! I have a 5 yr. old with SB also. She is in Kindergarten now. I know all the feelings of parents with SB kids. Where do you live? We are from Monroe,...
Hi there! I have a 5 yr. old with SB also. She is in Kindergarten now. I know all the feelings of parents with SB kids. Where do you live? We are from Monroe,...
Hi! Our Ana with SB, is soon to be 10yo, and in 4th grade. We have a nondisabled Daughter who is 5yo and in Kindergarten. We're in Asheville. Al and Karen in...
I live in Southern Pines, NC. It is near Pinehurst. Samantha Garrison ... From: cynthia teresa <cteresausa2003@...> Subject: Re: [SBAofNC] My daughter...
Hi Al and Karen, I live in Southern Pines, NC. I have 2 older brothers, 1 older sister and 1 younger half-sister. They are all non-disabled. ... From:...
hi there my daughter is 3 and has spina bifida i was looking for people to talk to about this disability. [Non-text portions of this message have been removed]...
I was wanting to know if there is anybody out there that goes to doctors in Chapel Hill for their spina bifida issues? You can be a child or adult. I am...
Yes my son is seen exclusively at Chapel Hill. I had him at Duke but I DID NOT like their clinic. The Spina Bifida Clinic at UNC is great and all of the...
I go to doctors at duke too. I always have. I have recently gotten to where i dont like them either. Do I have to get a referral to get an appt with them? ... ...
has anyone had a bladder augmentation? my daughter is getting ready to have surgery on friday the 17th.she is also having the malone antegrade continence...
You just need to get your primary physician that treats whomever has SB to fax a referral. Then they will call you and make an appointment. Their clinic is...
yeah ive had a couple of the doctors to get on my nerves like that too. i was cathed when i was little but when i started middle school the doctor wanted to...
Yes Kim. I have had a bladder augmentation. I really couldnt tell you though what is done or what to expect. I was really young when i had it. Probably...
Use Google and type in bladder augmentation. There are lots of sights that come up and give good descriptions, etc. Do the same for malone procedure. Mari ... ...
Kim I am an adult with SB so if you want to talk feel free to email me. I am 37 I walk with braces and crutches, have full bladder and bowel control. Would ...
Kim, The bladder augmentation and Malone procedures have allowed my daughter (now 14) to be more independent with the bathroom since she had it done around age...
Yes they do. The number to the SB clinic scheduling person ( her name is Christine) is 919-966-8813 I am sure she could answer any questions you may have. ...
Hi I am a 32 year old women with spina bifida. I wanted to talk to other women with a history of spina bifida who are pregnant or have gone through pregnancy....
Dear Friends, My daughter Emily has a Chiari Malformation II. When she was 1 month old the neurosurgeon wants to do a Cranial Decompression on her. We didn't...
My son's biggest issue before his decompression was gagging when he ate. He now has a significantly reduced gagging problem. When the decompression was done,...
i am so sorry to hear that kim. i will definitely keep her in my thoughts and prayers. Samantha ... From: casteel54 <casteel54@...> Subject: [SBAofNC]...
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